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Registered charity · Sunderland

International Niemann-Pick Disease Registry

  • 3 trustees
  • Income £448k (2025)
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Official record Charity Commission · updated 20th September 2026 · Sources

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
Education/training, The Advancement Of Health Or Saving Of Lives
Where
Throughout England And Wales
Website
www.inpdr.org (opens in a new tab)
Linked company
International Niemann-Pick Disease Registry
Registered
2017

Income and spending

  • YearIncomeSpending
  • 2025£448k£368k
  • 2024£131k£308k
  • 2023£173k£416k
Earlier years
  • 2022£457k£279k
  • 2021£390k£265k
Charitable objects

THE ONLY OBJECT FOR WHICH THE CHARITY IS ESTABLISHED IS TO RELIEVE SICKNESS AMONGST INDIVIDUALS AFFECTED BY NIEMANN-PICK DISEASES, THROUGH FACILITATING THE ADVANCEMENT OF EDUCATION IN ALL MATTERS CONCERNING SUCH DISEASES.

Board analysis for researchers

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

3 trustees on the board

9y median 9y
average tenure
9y
longest tenure

Trustees past 6 years

19.1y
average years in governance

First-time vs portfolio trustees

First-time (2)

Portfolio (1)

3
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 3The Advancement Of Health Or Saving Of Lives 3

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Tech and media 8Health and social care 2

Gaps to watch

  • Several long-serving trustees could step down together
  • Small board - little cover if a trustee leaves

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£448k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1175311
Status
Registered
Governing document
MEMORANDUM AND ARTICLES INCORPORATED 01 MAR 2017
Companies House
Company number 10646129 · Active
Contact on the register
01914150693 · info@inpdr.org
Edition
Register edition compiled 20th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data