International Niemann-Pick Disease Registry

Registered charity 1175311 Registered since 2017

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

trustees on the board

9y median 9y

average tenure

longest tenure

trustees past 6 years

18.9y

average years in governance

2 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 1The Advancement Of Health Or Saving Of Lives 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Tech and media 5Health and social care 2

Gaps to watch

Several long-serving trustees could step down together
Small board - little cover if a trustee leaves

Boards that share trustees

International Niemann-Pick Disease Alliance 1 shared trustee

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Related organisations iRelated organisationsBoards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

International Niemann-Pick Disease Alliance 1 shared trustee
Warrington and Halton Teaching Hospitals NHS Foundation Trust Similar size; both Health
Royal Docks Learning and Activity Centre Similar size; both Health
Heart Cells Foundation Similar size; both Health
Arts for Recovery in the Community Similar size; both Health
Rephael House Similar size; both Health

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.inpdr.org
Email	info@inpdr.org
Phone	01914150693
Address	SUITE 2E, NORTH SANDS BUSINESS CENTRE, LIBERTY WAY, SUNDERLAND, SR6 0QA

Finances

£447,821 latest income

Year	Income	Spending
2021	£390,375	£265,255
2022	£456,982	£279,140
2023	£173,361	£415,907
2024	£131,498	£307,686
2025	£447,821	£368,458

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of Lives

Who

Other Defined Groups

How

Provides ServicesActs As An Umbrella Or Resource Body

Charitable objects

THE ONLY OBJECT FOR WHICH THE CHARITY IS ESTABLISHED IS TO RELIEVE SICKNESS AMONGST INDIVIDUALS AFFECTED BY NIEMANN-PICK DISEASES, THROUGH FACILITATING THE ADVANCEMENT OF EDUCATION IN ALL MATTERS CONCERNING SUCH DISEASES.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 01 MAR 2017

Trustees (3)

3trustees

62median age

1aged 70+

Succession outlook: 1 of 3 trustees are aged 70 or over.

James Edward Greenage 77 Chair since 2017
Tarakegn Hiwot since 2017
Toni Mathiesonage 57 since 2017

Linked company (Companies House)

International Niemann-Pick Disease Registry · 10646129 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 01/03/2017

1 governing document(s) held from Companies House.

Connected charities (1)

International Niemann-Pick Disease Alliance 1 shared trustee

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