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Registered charity (CIO) · Cirencester

Alport UK

Alport UK is a registered charity (number 1154774) based in Cirencester, governed by 7 trustees and chaired by Professor Frances Anne Flinter since 2025. Latest income £179k (2025). Source: Charity Commission register, updated 25th October 2026.

  • 7 trustees
  • Income £179k (2025)
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Official record Charity Commission · updated 25th October 2026 · Sources · Free, no card or password

Network

The large node is Alport UK. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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People on this board also govern

Similar charities near Cirencester

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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
The Advancement Of Health Or Saving Of Lives
Where
Throughout England And Wales
Website
alportuk.org (opens in a new tab)
Registered
2013

Income and spending

  • YearIncomeSpending
  • 2025£179k£167k
  • 2024£154k£155k
  • 2023£92k£94k
Earlier years
  • 2022£37k£48k
  • 2021£60k£28k

Income trend, 2021 to 2025.

Income source mix, 2022: Government grants 51%. From the charity's annual return.

Charitable objects

THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.

Grants received

2 grants · £22,000 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £20,000
  • Barnwood Trust · £2,000

Most recent

  • The National Lottery Community Fund £20,0002026-02-25
  • Barnwood Trust £2,0002021-04-27
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

7 trustees on the board

1y median 1y
average tenure
1y
longest tenure
0
trustees past 6 years
4.9y
average years in governance

First-time vs portfolio trustees

First-time (5)

Portfolio (2)

2
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 6Education/training 2General Charitable Purposes 2Arts/culture/heritage/science 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Arts and leisure 1Business services 1Tech and media 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£179k latest income
31 days
Latest accounts filed after the due dateiFiled after the due dateDate the accounts were received minus the reporting due date, latest filed cycle, Charity Commission register.

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1154774
Status
Registered
Governing document
CIO - Foundation Registered 27 Nov 2013
Contact on the register
01793 847264 · info@alportuk.org
Edition
Register edition compiled 25th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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