Alport UK

Registered charity 1154774 CIO Registered since 2013

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

1y median 1y

average tenure

longest tenure

trustees past 6 years

4.6y

average years in governance

5 vs 1 portfolio

first-time trustees

company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 6Education/training 2General Charitable Purposes 2Arts/culture/heritage/science 1

Commercial experience

Arts and leisure 1Business services 1Tech and media 1

Boards that share trustees

The D'Oyly Carte Charitable Trust 1 shared trustee
The European Doctors Orchestra 1 shared trustee
The Amelia Chadwick Trust 1 shared trustee

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Related organisations

The Amelia Chadwick Trust 1 shared trustee
The European Doctors Orchestra 1 shared trustee
The D'Oyly Carte Charitable Trust 1 shared trustee
Friends of ADI Similar size; both Health
The Chaya Reizel Hirsch Memorial Fund LTD Similar size; both Health
British and Irish Association of Stroke Physicians Similar size; both Health

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	alportuk.org
Email	info@alportuk.org
Phone	01793 847264
Address	PO Box 329, Cirencester, GL7 9JA

Finances

£178,592 latest income

Year	Income	Spending
2021	£60,067	£28,327
2022	£37,443	£47,756
2023	£92,190	£93,858
2024	£154,267	£155,496
2025	£178,592	£166,679

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Other Defined Groups

How

Provides Advocacy/advice/information

Charitable objects

THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.

Governing document: CIO - Foundation Registered 27 Nov 2013

Trustees (7)

7trustees

67median age

0aged 70+

Professor Frances Anne Flinterage 67 Chair since 2025
Alice Turner since 2025
Amanda Mclean since 2025
Professor Daniel Gale since 2025
Professor Neil Turner since 2025
Professor Rachel Lennon since 2025
Susie Gear since 2025

Connected charities (3)

The European Doctors Orchestra 1 shared trustee
The Amelia Chadwick Trust 1 shared trustee
The D'Oyly Carte Charitable Trust 1 shared trustee

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