Alport UK
Registered charity 1154774 CIO Registered since 2013
Operates: Throughout England And Wales
Connected trustee network
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Professor Frances Anne Flinter Chair since 2025
- Alice Turner since 2025
- Amanda Mclean since 2025
- Professor Daniel Gale since 2025
- Professor Neil Turner since 2025
- Professor Rachel Lennon since 2025
- Susie Gear since 2025
First-time vs portfolio trustees
First-time (5)
- Amanda Mclean since 2025
- Professor Daniel Gale since 2025
- Professor Neil Turner since 2025
- Professor Rachel Lennon since 2025
- Susie Gear since 2025
Portfolio (2)
- Professor Frances Anne Flinter Chair since 2025
- Alice Turner since 2025
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.
Connected through a shared trustee
- The Amelia Chadwick Trust 1 shared trustee
- The European Doctors Orchestra 1 shared trustee
- The D'Oyly Carte Charitable Trust 1 shared trustee
Also active in the same field
- Friends of ADI Similar size; both Health
- The Chaya Reizel Hirsch Memorial Fund LTD Similar size; both Health
- British and Irish Association of Stroke Physicians Similar size; both Health
Deterministic, from public records.
Contact
| Website | alportuk.org |
| info@alportuk.org | |
| Phone | 01793 847264 |
| Address | PO Box 329, Cirencester, GL7 9JA |
Finances
£178,592 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £60,067 | £28,327 |
| 2022 | £37,443 | £47,756 |
| 2023 | £92,190 | £93,858 |
| 2024 | £154,267 | £155,496 |
| 2025 | £178,592 | £166,679 |
What it does
What
The Advancement Of Health Or Saving Of LivesWho
Other Defined GroupsHow
Provides Advocacy/advice/informationCharitable objects
THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.
Governing document: CIO - Foundation Registered 27 Nov 2013
Trustees (7)
- Professor Frances Anne Flinterage band 65-69 Chair since 2025
- Alice Turner since 2025
- Amanda Mclean since 2025
- Professor Daniel Gale since 2025
- Professor Neil Turner since 2025
- Professor Rachel Lennon since 2025
- Susie Gear since 2025
Connected charities (3)
- The European Doctors Orchestra 1 shared trustee
- The Amelia Chadwick Trust 1 shared trustee
- The D'Oyly Carte Charitable Trust 1 shared trustee
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