The Ehlers-Danlos Support UK

Registered charity 1157027 Registered since 2014

Operates: Northern Ireland, Throughout England And Wales, Scotland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

2.7y median 2y

average tenure

longest tenure

trustees past 6 years

6.3y

average years in governance

8 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 11The Advancement Of Health Or Saving Of Lives 11General Charitable Purposes 10Disability 1

Commercial experience

Other services 12Health and social care 4Education 2

Boards that share trustees

National Voices 1 shared trustee
Greater Manchester Sports Partnership 1 shared trustee
Pelican Cancer Foundation 1 shared trustee

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Related organisations

National Voices 1 shared trustee
Pelican Cancer Foundation 1 shared trustee
Greater Manchester Sports Partnership 1 shared trustee
Wales Council for Deaf People Similar size; both Disability
Scarborough Survivors Similar size; both Disability
Headway Devon Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.ehlers-danlos.uk
Email	info@ehlers-danlos.org
Phone	02087365604
Address	International House, 66 Lavender Hill, LONDON, SW11 5RQ

Finances

£434,770 latest income

Year	Income	Spending
2021	£406,887	£405,498
2022	£483,707	£496,377
2023	£423,719	£537,080
2024	£380,301	£428,558
2025	£434,770	£392,489

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

FOR THE RELIEF OF PERSONS SUFFERING FROM EHLERS-DANLOS SYNDROME AND TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OF THE SYNDROME.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 13 FEB 2014AS AMENDED BY SPECIAL RESOLUTION(S) DATED 25 MAY 2016 as amended on 11 Jun 2022 as amended on 13 May 2023

Trustees (11)

11trustees

50median age

1aged 70+

Charlotte Emily Williamsage 47 Chair since 2020
Alison Jane Rouxage 71 since 2022
Anne Dominique Myra Laveryage 55 since 2022
Dr Jill Harrisonage 52 since 2024
Helen Ballage 59 since 2024
Kathryn Jayne Caldwellage 46 since 2024
Laure Francoise Marie Nas De Tourrisage 42 since 2022
Natasha Larkinage 46 since 2025
Sarah Bullockage 55 since 2025
Timothy Peter de Winterage 47 since 2024
Yanina Graciela Aubrey-Gimenezage 50 since 2024

Linked company (Companies House)

The Ehlers-Danlos Support UK · 08924646 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 05/03/2014

6 governing document(s) held from Companies House.

Connected charities (3)

National Voices 1 shared trustee
Greater Manchester Sports Partnership 1 shared trustee
Pelican Cancer Foundation 1 shared trustee

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