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Registered charity · London

The Ehlers-Danlos Support UK

  • 11 trustees
  • Income £435k (2025)
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Official record Charity Commission · updated 13th September 2026 · Sources

Who leads it

Show all 11 trustees

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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How it connects

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People on this board also serve on 3 other charities:

Shared trustees are formal board links, not proof the organisations work together.

About

What it does
General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Scotland, Northern Ireland
Website
www.ehlers-danlos.uk (opens in a new tab)
Linked company
The Ehlers-Danlos Support UK
Registered
2014

Income and spending

  • YearIncomeSpending
  • 2025£435k£392k
  • 2024£380k£429k
  • 2023£424k£537k
Earlier years
  • 2022£484k£496k
  • 2021£407k£405k
Charitable objects

FOR THE RELIEF OF PERSONS SUFFERING FROM EHLERS-DANLOS SYNDROME AND TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OF THE SYNDROME.

Board analysis for researchers

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

2.7y median 2y
average tenure
6y
longest tenure

Trustees past 6 years

6.4y
average years in governance

First-time vs portfolio trustees

First-time (8)

Portfolio (3)

11
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 11The Advancement Of Health Or Saving Of Lives 11General Charitable Purposes 10Disability 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Other services 12Health and social care 4Education 2

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£435k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1157027
Status
Registered
Governing document
MEMORANDUM AND ARTICLES INCORPORATED 13 FEB 2014AS AMENDED BY SPECIAL RESOLUTION(S) DATED 25 MAY 2016 as amended on 11 Jun 2022 as amended on 13 May 2023
Companies House
Company number 08924646 · Active
Contact on the register
02087365604 · info@ehlers-danlos.org
Edition
Register edition compiled 13th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data