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The Ehlers-Danlos Support UK

Official record Companies House · updated 27th September 2026 · Sources

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Who leads it

Previous officers 18

  1. Ellie Cannell 2022-2025 Director View profile
  2. Sarita Yasmin Aujla 2020-2025 Director View profile
  3. Dr Adrian Mark Steel 2018-2024 Director View profile
  4. Jason Stephen Pearce 2018-2024 Director View profile
  5. Ella Kay Yvonne Griffiths 2017-2017 Director View profile
  6. Stephen Robert Stacey 2017-2024 Director View profile
  7. Sue Ann West 2016-2017 Director View profile
  8. Toni Kristian Pearce 2015-2018 Director View profile
  9. Dr Claire Elizabeth Dunne 2015-2018 Director View profile
  10. Nigel John Cole 2015-2016 Director View profile
  11. Mark William Redhead 2014-2021 Director View profile
  12. Dr Elizabeth Clare Robinson 2014-2021 Director View profile
  13. Leah Sonia Mansfield 2014-2024 Director View profile
  14. Frances Mary Gawthrop 2014-2022 Director View profile
  15. Angela Ruth Hunter 2014-2021 Director View profile
  16. Leonard Keith Taub 2014-2015 Director View profile
  17. Janine Estelle Elster 2014-2014 Director View profile
  18. Adrian Mark Steel 2021-2024 Secretary View profile

Directors and secretaries as filed at Companies House.

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About

Incorporated
05/03/2014
Also a registered charity
The Ehlers-Danlos Support UK

Grants received

11 grants · £654,563 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £654,563 (11 grants)

Most recent

  • The National Lottery Community Fund £19,9752026-02-03
  • The National Lottery Community Fund £19,9502025-07-31
  • The National Lottery Community Fund £19,8002025-02-17
  • The National Lottery Community Fund £19,9852024-07-03
  • The National Lottery Community Fund £9,9502023-04-21
Board analysis

Board DNA

How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.

10 directors on the board

2.7y median 1.5y
average tenure
6.4y
longest tenure

Directors past 6 years

First-time vs portfolio directors

First-time (8)

Portfolio (2)

Left in the last 12 months

Where else this board sits iWhere else this board sitsThe charitable fields these directors govern in elsewhere, by Charity Commission classification. Excludes this company and any charity it is the legal face of.

Health and social care 3Other services 1

The sectors these directors govern in elsewhere. This company, and any charity it is the legal face of, are excluded - counting them would just tell you what you are already looking at.

Gaps to watch

  • Narrow spread of sectors across the board

Where to look Suggested search: directors from a wider range of sectors.

Sources

Official record from Companies House. Governance Register calculates the connections.

Record details
Company number
08924646
Status
Active
Type
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption)
Edition
Register edition compiled 27th September 2026
Labels
Official record from Companies House · Calculated derived by Governance Register.

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