Treatsma

Registered charity 1182610 CIO Registered since 2019

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

7.3y median 8y

average tenure

longest tenure

trustees past 6 years

7.4y

average years in governance

3 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

General Charitable Purposes 3The Advancement Of Health Or Saving Of Lives 3

Gaps to watch

Several long-serving trustees could step down together
Small board - little cover if a trustee leaves

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Related organisations

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Chantal Rosenbaum Foundation Similar size; both Health
Cardiac Rehab Support West Sussex Similar size; both Health
Marloes & Dale Public Access Defibrillation Scheme (CIO) Similar size; both Health

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	https://www.treatsma.uk
Email	treatsma@treatsma.uk
Phone	03008000202
Address	TreatSMA, 85 Great Portland St, First Floor, London, W1W 7LT

Finances

£2,563 latest income

Year	Income	Spending
2021	£10,851	£1,924
2022	£17,648	£2,292
2023	£18,359	£188
2024	£871	£12,905
2025	£2,563	£951

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of Lives

Who

Children/young PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesOther Defined Groups

How

Provides Advocacy/advice/informationSponsors Or Undertakes ResearchOther Charitable Activities

Charitable objects

THE OBJECTS OF THE CIO ARE TO PROMOTE AND PROTECT THE HEALTH AND WELLBEING OF PERSONS WITH SPINALMUSCULAR ATROPHY, THEIR FAMILIES AND CARERS, IN PARTICULAR BY:(A) ADVANCING KNOWLEDGE IN ALL ASPECTS OF SPINAL MUSCULAR ATROPHY;(B) IMPROVING ACCESS TO APPROPRIATE HEALTHCARE, INCLUDING DIAGNOSTICS, TREATMENTS,AND ASSISTIVE TECHNOLOGIES; AND(C) PROMOTING SOCIAL INCLUSION OF PEOPLE WITH SPINAL MUSCULAR ATROPHY, THEIR FAMILIESAND CARERS

Governing document: CIO - FOUNDATION Registered 25 Mar 2019

Trustees (3)

3trustees

0aged 70+

Andrew Thornton since 2020
Dr Gennadiy Ilyashenko since 2018
Lucy Frost since 2018

Connected charities (0)

No charities share a trustee (from current data).

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