Registered charity (CIO) · Petersfield
Pompe Support Network
- 9 trustees
- Income £94k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
Network
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Who leads it
- Allan David John MuirChair · since 2019
- Barbara Jane MuirTrustee · since 2019
- Dr Kevin John O'DonnellTrustee · since 2019
- Gemma Leanne StubbingsTrustee · since 2026
- Kevin William AnnesleyTrustee · since 2020
- Luke David FraserTrustee · since 2025
- Malcolm KnightleyTrustee · since 2023
- Stuart Derick GoodwinTrustee · since 2026
- Wayne BelfittTrustee · since 2022
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Northern Ireland, Scotland
- Website
- www.pompe.uk (opens in a new tab)
- Registered
- 2019
Income and spending
- YearIncomeSpending
- 2025£94k£68k
- 2024£72k£61k
- 2023£92k£75k
Earlier years
- 2022£80k£119k
- 2021£93k£45k
Income trend, 2021 to 2025.
Charitable objects
TO RELIEVE SICKNESS OF CHILDREN AND ADULTS SUFFERING FROM POMPE DISEASE IN THE UNITED KINGDOM AND THROUGHOUT THE WORLD, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) CONTRIBUTING TO THE ADVANCEMENT OF QUALITY RESEARCH & EDUCATION IN RESPECT OF POMPE DISEASE; AND (B) PROVIDING INFORMATION, ADVICE AND SUPPORT TO SUCH INDIVIDUALS, THEIR FAMILIES AND CARERS BY SUCH MEANS AS THE TRUSTEES MAY DETERMINE 2. TO RELIEVE THE NEEDS OF BEREAVED FAMILIES WHO HAVE LOST FAMILY MEMBERS TO POMPE DISEASE IN THE UNITED KINGDOM BY SUCH MEANS AS THE TRUSTEES MAY DETERMINE
Grants received
3 grants · £30,000 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £20,000 (2 grants)
- Department for Digital, Culture, Media & Sport · £10,000
Most recent
- The National Lottery Community Fund
- Department for Digital, Culture, Media & Sport
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
9 trustees on the board
- Allan David John Muir Chair since 2019
- Barbara Jane Muir since 2019
- Dr Kevin John O'Donnell since 2019
- Gemma Leanne Stubbings since 2026
- Kevin William Annesley since 2020
- Luke David Fraser since 2025
- Malcolm Knightley since 2023
- Stuart Derick Goodwin since 2026
- Wayne Belfitt since 2022
Trustees past 6 years
- Allan David John Muir Chair since 2019
- Barbara Jane Muir since 2019
- Dr Kevin John O'Donnell since 2019
- Kevin William Annesley since 2020
First-time vs portfolio trustees
First-time (8)
- Barbara Jane Muir since 2019
- Dr Kevin John O'Donnell since 2019
- Gemma Leanne Stubbings since 2026
- Kevin William Annesley since 2020
- Luke David Fraser since 2025
- Malcolm Knightley since 2023
- Stuart Derick Goodwin since 2026
- Wayne Belfitt since 2022
Portfolio (1)
- Allan David John Muir Chair since 2019
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1186383
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 15 Nov 2019 as amended on 18 May 2022
- Contact on the register
- 01730231554 · hello@pompe.uk
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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