Pompe Support Network
Registered charity 1186383 CIO Registered since 2019
Operates: Throughout England And Wales, Northern Ireland, Scotland
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Boards that share trustees
- UK Lysosomal Storage Disorder Collaborative 1 shared trustee
Related organisations iRelated organisationsBoards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
- UK Lysosomal Storage Disorder Collaborative 1 shared trustee
- Eccabi LTD Similar size; both Disability
- British Association of Play Therapists Similar size; both Disability
- Giftinghumanity Similar size; both Disability
- Islamic Appeal Similar size; both Disability
- The Refai Foundation (UK) Similar size; both Disability
Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.pompe.uk |
| hello@pompe.uk | |
| Phone | 01730231554 |
| Address | 43A NORTH LANE, BURITON, PETERSFIELD, GU31 5RS |
Finances
£93,540 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £93,292 | £45,332 |
| 2022 | £79,526 | £118,709 |
| 2023 | £92,276 | £74,506 |
| 2024 | £71,896 | £61,256 |
| 2025 | £93,540 | £68,326 |
What it does
What
The Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeopleElderly/old PeoplePeople With DisabilitiesHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
TO RELIEVE SICKNESS OF CHILDREN AND ADULTS SUFFERING FROM POMPE DISEASE IN THE UNITED KINGDOM AND THROUGHOUT THE WORLD, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) CONTRIBUTING TO THE ADVANCEMENT OF QUALITY RESEARCH & EDUCATION IN RESPECT OF POMPE DISEASE; AND (B) PROVIDING INFORMATION, ADVICE AND SUPPORT TO SUCH INDIVIDUALS, THEIR FAMILIES AND CARERS BY SUCH MEANS AS THE TRUSTEES MAY DETERMINE 2. TO RELIEVE THE NEEDS OF BEREAVED FAMILIES WHO HAVE LOST FAMILY MEMBERS TO POMPE DISEASE IN THE UNITED KINGDOM BY SUCH MEANS AS THE TRUSTEES MAY DETERMINE
Governing document: CIO - FOUNDATION Registered 15 Nov 2019 as amended on 18 May 2022
Trustees (9)
- Allan David John Muirage 70 Chair since 2019
- Barbara Jane Muir since 2019
- Dr Kevin John O'Donnell since 2019
- Gemma Leanne Stubbings since 2026
- Kevin William Annesley since 2020
- Luke David Fraser since 2025
- Malcolm Knightley since 2023
- Stuart Derick Goodwin since 2026
- Wayne Belfitt since 2022
Connected charities (1)
- UK Lysosomal Storage Disorder Collaborative 1 shared trustee
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