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Registered charity (CIO) · Petersfield

Pompe Support Network

  • 9 trustees
  • Income £94k (2025)

Official record Charity Commission · updated 27th September 2026 · Sources

Network

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Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Northern Ireland, Scotland
Website
www.pompe.uk (opens in a new tab)
Registered
2019

Income and spending

  • YearIncomeSpending
  • 2025£94k£68k
  • 2024£72k£61k
  • 2023£92k£75k
Earlier years
  • 2022£80k£119k
  • 2021£93k£45k

Income trend, 2021 to 2025.

Charitable objects

TO RELIEVE SICKNESS OF CHILDREN AND ADULTS SUFFERING FROM POMPE DISEASE IN THE UNITED KINGDOM AND THROUGHOUT THE WORLD, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) CONTRIBUTING TO THE ADVANCEMENT OF QUALITY RESEARCH & EDUCATION IN RESPECT OF POMPE DISEASE; AND (B) PROVIDING INFORMATION, ADVICE AND SUPPORT TO SUCH INDIVIDUALS, THEIR FAMILIES AND CARERS BY SUCH MEANS AS THE TRUSTEES MAY DETERMINE 2. TO RELIEVE THE NEEDS OF BEREAVED FAMILIES WHO HAVE LOST FAMILY MEMBERS TO POMPE DISEASE IN THE UNITED KINGDOM BY SUCH MEANS AS THE TRUSTEES MAY DETERMINE

Grants received

3 grants · £30,000 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £20,000 (2 grants)
  • Department for Digital, Culture, Media & Sport · £10,000

Most recent

  • The National Lottery Community Fund £10,0002022-10-14
  • Department for Digital, Culture, Media & Sport £10,0002020-07-29
  • The National Lottery Community Fund £10,0002020-01-31
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

9 trustees on the board

3.9y median 4y
average tenure
7y
longest tenure

Trustees past 6 years

5.2y
average years in governance

First-time vs portfolio trustees

First-time (8)

Portfolio (1)

1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 9The Advancement Of Health Or Saving Of Lives 9Education/training 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£94k latest income · income exceeded spending in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1186383
Status
Registered
Governing document
CIO - FOUNDATION Registered 15 Nov 2019 as amended on 18 May 2022
Contact on the register
01730231554 · hello@pompe.uk
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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