UK Lysosomal Storage Disorder Collaborative
Registered charity 1201132 CIO Registered since 2022
Operates: Throughout England And Wales
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Boards that share trustees
- Pompe Support Network 1 shared trustee
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- Pompe Support Network 1 shared trustee
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Contact
| Website | https://www.lsdcollaborative.org.uk/ |
| info@npuk.org | |
| Phone | 01914150693 |
| Address | Mps House, Repton Place, White Lion Road, Amersham, HP7 9LP |
Finances
£0 latest income
| Year | Income | Spending |
|---|---|---|
| 2023 | £0 | £0 |
| 2024 | £0 | £0 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesWho
People With DisabilitiesOther Charities Or Voluntary BodiesThe General Public/mankindHow
Provides Advocacy/advice/informationActs As An Umbrella Or Resource BodyCharitable objects
(1) THE ONLY OBJECTS FOR WHICH THE CIO IS ESTABLISHED ARE: (A) TO PROMOTE HEALTH AND RELIEVE SICKNESS AND DISTRESS OF THOSE AFFECTED BY LYSOSOMAL STORAGE AND OTHER RARE DISORDERS AND THEIR FAMILIES AND CARERS, INCLUDING THROUGH THE EDUCATION OF THE PUBLIC IN ALL MATTERS CONCERNING THESE DISEASES; AND (B) TO PROMOTE THE EFFICIENCY AND EFFECTIVENESS OF CHARITIES AND THE EFFECTIVE USE OF CHARITABLE RESOURCES AMONGST CHARITIES ESTABLISHED TO PROMOTE HEALTH AND RELIEVE SICKNESS IN RELATION TO THESE DISEASES, IN EITHER CASE, AS THE TRUSTEES MAY DETERMINE, ANYWHERE IN THE UK AND/OR OVERSEAS(“THE OBJECTS”).
Governing document: CIO - ASSOCIATION Registered 24 Nov 2022
Trustees (5)
- Toni Angela Mathiesonage 57 Chair since 2022
- Allan David John Muirage 70 since 2022
- Robert Stevens since 2022
- Tanya Louise Collin-Histedage 57 since 2022
- Valerie Ann Buxtonage 65 since 2022
Connected charities (1)
- Pompe Support Network 1 shared trustee
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