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Registered charity (CIO) · Amersham

UK Lysosomal Storage Disorder Collaborative

  • 5 trustees
  • Income £40k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is UK Lysosomal Storage Disorder Collaborative. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
Education/training, The Advancement Of Health Or Saving Of Lives
Where
Throughout England And Wales
Website
www.lsdcollaborative.org.uk (opens in a new tab)
Registered
2022

Income and spending

  • YearIncomeSpending
  • 2025£40k£18k
  • 2024£0£0
  • 2023£0£0

Income trend, 2023 to 2025.

Charitable objects

(1) THE ONLY OBJECTS FOR WHICH THE CIO IS ESTABLISHED ARE: (A) TO PROMOTE HEALTH AND RELIEVE SICKNESS AND DISTRESS OF THOSE AFFECTED BY LYSOSOMAL STORAGE AND OTHER RARE DISORDERS AND THEIR FAMILIES AND CARERS, INCLUDING THROUGH THE EDUCATION OF THE PUBLIC IN ALL MATTERS CONCERNING THESE DISEASES; AND (B) TO PROMOTE THE EFFICIENCY AND EFFECTIVENESS OF CHARITIES AND THE EFFECTIVE USE OF CHARITABLE RESOURCES AMONGST CHARITIES ESTABLISHED TO PROMOTE HEALTH AND RELIEVE SICKNESS IN RELATION TO THESE DISEASES, IN EITHER CASE, AS THE TRUSTEES MAY DETERMINE, ANYWHERE IN THE UK AND/OR OVERSEAS(“THE OBJECTS”).

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

5 trustees on the board

4y median 4y
average tenure
4y
longest tenure
0
trustees past 6 years
13.5y
average years in governance

First-time vs portfolio trustees

First-time (4)

Portfolio (1)

4
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 5The Advancement Of Health Or Saving Of Lives 5Disability 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 3Tech and media 3Other services 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 2 years.
2023
2024
incomespending

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1201132
Status
Registered
Governing document
CIO - ASSOCIATION Registered 24 Nov 2022
Contact on the register
01914150693 · info@npuk.org
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data