Spinal Muscular Atrophy Foundation
Donations deductibleSpinal Muscular Atrophy Foundation's network
11 people6 organisationsi11 people and 6 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (11). Violet dotted lines (6) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
11 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Dinakar Singh Chair | Board Chairman | 2018 | 8 yrs |
| Andrew Knight | Director | 2018 | 8 yrs |
| Douglas Cole MD | Director | 2018 | 8 yrs |
| Gerald Fischbach MD | Director | 2018 | 8 yrs |
| Helen Meates | Director | 2018 | 8 yrs |
| Jonathan Leff | Director | 2018 | 8 yrs |
| Juli OH ESQ | Treasurer | 2018 | 8 yrs |
| Loren ENG | President | 2018 | 8 yrs |
| Simon Prisk ESQ | Director | 2018 | 8 yrs |
| Stephen Mikita ESQ | Director | 2018 | 8 yrs |
| Story Landis | Director | 2018 | 8 yrs |
About
- Legal name
- Spinal Muscular Atrophy Foundation
- EIN
- 010759380
- Address
- 888 7th Ave Ste 400, New York, NY, 10106-0401
- State
- New York
- Activity (NTEE)
- B99 Education
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Education
- Size band
- 9 (IRS master file code)
- IRS ruling date
- 1 May 2003
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2023
- IRS Publication 78
- PF (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsDinakar Singh
≥8years on the filingsAndrew Knight
≥8years on the filingsDouglas Cole MD
≥8years on the filingsGerald Fischbach MD
Filed finances
No Form 990 financial figures are held for this organisation yet (smaller organisations file a shorter return, and some filings are not yet read).
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Spinal Muscular Atrophy Foundation likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: New York Department of State, active corporations (data.ny.gov n9v6-gdp6). Licence: New York open data terms of use. Data last fetched 18 October 2026.
- State
- New York
- Entity type
- Domestic Not-For-Profit Corporation
- Status
- Active
- Formed
- 20 November 2002
- Registered agent
- Not stated