The Multiple Myeloma Research Foundation Inc
Donations deductibleThe Multiple Myeloma Research Foundation Inc's network
17 people1 organisationi17 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (17). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
17 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 17 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Thomas Conheeney Chair (also filed as Tom Conheeney) | Chairman | 2018 | 8 yrs |
| Adrian Rosenkranz | Director | 2020 | 6 yrs |
| David Lucchino | Director | 2018 | 8 yrs |
| David Parkinson MD | Director | 2018 | 8 yrs |
| Gerald McDougall | Vice Chairman | 2018 | 8 yrs |
| Hugh Martin | Director | 2018 | 8 yrs |
| Karen Andrews | Director | 2018 | 8 yrs |
| Kathy Giusti | Founder & Director | 2018 | 8 yrs |
| Kenneth Anderson MD | Director | 2018 | 8 yrs |
| Kimberly White | Director | 2022 | 4 yrs |
| Lori Tauber-Marcus | Director | 2018 | 8 yrs |
| Marie Pinizzotto MD | Director | 2018 | 8 yrs |
| Michael Mortimer | Director | 2018 | 8 yrs |
| Rodney Gilmore | Director | 2018 | 8 yrs |
| Steve Shak MD (also filed as Steven Shak) | Director | 2018 | 8 yrs |
| Susan Marvin | Director | 2018 | 8 yrs |
| William McKiernan | Director | 2018 | 8 yrs |
Officers and senior leadership
30 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Alan Heitner | Treasurer & CFO, As of Oct. 2024 | 2024 |
| Alicia O'Neill | Dir. of Events Business Development | since 2018 |
| Anne Quinn Young | Chief Mission Officer | since 2018 |
| Brian Hochberg | Principal Gift Officer | 2024 |
| Charles Volpe | Director, Pr & Communciations | since 2022 |
| Christopher Williams | VP of Business Development | since 2018 |
| Daniel Auclair | Chief Scientific Officer | since 2018 |
| Eva M Lepisto | VP of Informatics | since 2022 |
| George Mulligan | Chief Scientific Officer | since 2022 |
| Greg Rubenstein | VP of Marketing | since 2020 |
| Hearn CHO | Chief Medical Officer | since 2022 |
| Heather Steiger | Sr Director Digital Marketing | since 2022 |
| Joanne Puglia | Sr Director Finance, Controller | since 2022 |
| Karen Dietz | Secretary/in-House Counsel | since 2018 |
| Karen Woolley | Clinical Operations Manager | since 2018 |
| Katie Wozniak | VP of Clinical Research | since 2023 |
| Laura Gilman | VP of Events | since 2018 |
| Margaret Furlong | Assoc. Dir. of Clinical Ops. | 2018 |
| Mark Hamilton | Associate Director, Research | since 2020 |
| Mary Derome | Dir. of Med. Comms & Educ. | 2018 |
| Michael Adreini | COO | since 2019 |
| Michael Andreini | President & CEO | since 2022 |
| Mindy Flinn | VP of Development, Thru Sept. 2023 | since 2022 |
| Patrick Simms | VP of Research (Thru 12/2019) | 2019 |
| Peter Kosa | Mif Managing Director | since 2019 |
| Robert Miani | Treasurer/CFO | since 2018 |
| Stephanie Oestreich | Managing Director, Mif | 2024 |
| Steven Labkoff MD | Chief Data Officer | since 2019 |
| Steven Varley | VP of Development | 2019 |
| Todd Brooks | Sr Principal Gift Officer | since 2022 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Michael Andreini | President & CEO | 40 | $535k | $34k | |
| Stephanie Oestreich | Managing Director, Mif | 40 | $398k | $34k | |
| Anne Quinn Young | Chief Mission Officer | 40 | $375k | $19k | |
| George Mulligan | Chief Scientific Officer | 40 | $371k | $65k | |
| Karen Dietz | Secretary, CAO & General Counsel | 40 | $287k | $48k | |
| Katie Wozniak | VP of Clinical Research | 40 | $244k | $59k | |
| Alan Heitner | Treasurer & CFO | 40 | $231k | $11k | |
| Hearn Cho | Chief Medical Officer | 32 | $228k | $9k | |
| Pam Speer Lewis | VP of Development | 40 | $225k | $20k | |
| Greg Rubenstein | VP of Marketing | 40 | $221k | $62k | |
| Joanne Puglia | Sr Director Finance, Controller | 40 | $200k | $12k | |
| Ashley Blanchard | Sr Director, Strategic Partnerships | 40 | $190k | $58k | |
| Brian Hochberg | Principal Gift Officer | 40 | $185k | $56k | |
| Francesca Larosa | Sr Director, Human Resources | 40 | $183k | $27k | |
| Kathy Giusti | Founder & Director | 2 | $0 | ||
| Thomas Conheeney | Chairman | 2 | $0 | ||
| Gerald McDougall | Vice Chairman | 2 | $0 | ||
| Kenneth Anderson MD | Director | 2 | $0 | ||
| Karen Andrews | Director | 2 | $0 | ||
| Rodney Gilmore | Director | 2 | $0 | ||
| David Lucchino | Director | 2 | $0 | ||
| Lori Tauber-Marcus | Director | 2 | $0 | ||
| Hugh Martin | Director | 2 | $0 | ||
| William McKiernan | Director | 2 | $0 | ||
| David Parkinson MD | Director | 2 | $0 | ||
| Marie Pinizzotto MD | Director Thru 12/31/2025 | 2 | $0 | ||
| Adrian Rosenkranz | Director | 2 | $0 | ||
| Steve Shak MD | Director | 2 | $0 | ||
| Kimberly White | Director | 2 | $0 |
Colorado roster
19 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263029369). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Hugh Martin | Director |
| Adrian Rosenkranz | Director |
| Kenneth Anderson | Director |
| Lori Tauber-Marcus | Director |
| David Lucchino | Director |
| William McKiernan | Director |
| Alan Heitner | Treasurer |
| Kimberly White | Director |
| Michael Andreini | President & CEO |
| Gerald McDougall | Vice Chairman |
| Karen Dietz | Secretary |
| Thomas Conheeney | Chairman |
| Karen Andrews | Director |
| Kathy Giusti | Director |
| Steve Shak | Director |
| Rodney Gilmore | Director |
| William Hait | Director |
| Alan Heitner | |
| David Parkinson | Director |
About
- Legal name
- The Multiple Myeloma Research Foundation Inc
- EIN
- 061504413
- Address
- 383 Main Ave 5th Floor, Norwalk, CT, 06851-1586
- State
- Connecticut
- Mission
- (as filed on the Form 990)
- Activity (NTEE)
- G50 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 9 (IRS master file code)
- Formed
- 1998
- Principal officer
- Michael Andreini (as named on the Form 990)
- IRS ruling date
- 1 March 1998
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsThomas Conheeney
≥8years on the filingsDavid Lucchino
≥8years on the filingsDavid Parkinson MD
≥8years on the filingsGerald McDougall
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $62.9m
- Total liabilities
- $14.8m
- Net assets or fund balances
- $48m
- Contributions and grants received
- $26.6m
- Program service revenue
- $8.7m
- Grants and similar paid out
- $3.6m
- Employees
- 80
- Volunteers
- 200
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $29.1m | $35.6m | Deficit $6.5m |
As filed on the IRS Form 990. US dollars.
Grants paid
8 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Icahn School of Medicine at Mount Sinai | Site investment grant, mac grant | $1.1m |
| University of Texas MD Anderson Cancer Center | Vlab projects | $426k |
| Beckman Research Institute of City of Hope | Site investment grant | $171k |
| Washington University in St Louis | Site investment grant | $157k |
| Beth Isreal Deaconess Medical Center | Fellow, site investment grant | $136k |
| Indiana University | $60k | |
| Trustees of Boston University | $36k | |
| University of Miami | $30k |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.The Multiple Myeloma Research Foundation, Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Connecticut Secretary of the State, business registry and officers (data.ct.gov n7gp-d28j and ka36-64k6). Licence not stated. Data last fetched 18 October 2026.
- State
- Connecticut
- Entity type
- Non-Stock
- Status
- Active
- Formed
- 13 January 1998
- Registered agent
- Karen A. Dietz (city and state not held)
Officers (3)
- Alan Heitner Officer
- Karen Dietz Officer
- Michael Andreini Officer
City and state of officers are not held in this extract.