Muscular Dystrophy Association
Donations deductibleMuscular Dystrophy Association's network
21 people8 organisationsi21 people and 8 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (21). Violet dotted lines (8) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
21 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 19 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Governor Brad Henry Chair | Chairman | 2018 | 8 yrs |
| Anjan Aralihalli | Director | 2019 | 7 yrs |
| Ankur Ghia | Outgoing Director | 2019 | 7 yrs |
| Benjamin Cumbo III | Director | 2018 | 8 yrs |
| Charles D Schoor ESQ | Director | 2018 | 8 yrs |
| Christopher J Rosa PHD (also filed as Chris Rosa) | Vice Chairman | 2018 | 8 yrs |
| Daniel G Fries (also filed as Dan Fries) | Director | 2018 | 8 yrs |
| Elizabeth McNally MD PHD | Director | 2019 | 7 yrs |
| Eugene Williams | Outgoing Director | 2018 | 8 yrs |
| Hon Robert E Pipia | Director | 2020 | 6 yrs |
| Jennifer Gottlieb | Director | 2020 | 6 yrs |
| John Costantino | Director | 2018 | 8 yrs |
| John E Howell | Director | 2020 | 6 yrs |
| Lilian WU PHD | Director | 2018 | 8 yrs |
| Louis Kunkel PHD | Director | 2018 | 8 yrs |
| Mark Smith | Director | 2019 | 7 yrs |
| Matt Plummer | Director | 2021 | 5 yrs |
| Mike Rowlett | Director | 2018 | 8 yrs |
| Nancy Kindelan | Director | 2021 | 5 yrs |
| Steve Furnary | Director | 2023 | 3 yrs |
| Tom Simon | Director | 2023 | 3 yrs |
Officers and senior leadership
31 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Adam Cotumaccio | Chief Impact & Philanthropy Officer | 2019 |
| Angela LEK | VP, Research | since 2022 |
| Anothony Englert | VP, Fundraising Operations | 2018 |
| Brian Beirne | VP of Multi-Channel Marketing | since 2021 |
| Deborah Barge | SVP, Chief Field Officer | 2020 |
| Donald Wood | President & CEO (Nov-Dec) | since 2020 |
| Eileen Timmins PHD Jan-Sept | Asst. Sec. EVP Chief People Officer | 2018 |
| Ellen VOS | President & CEO (Jan-Oct) | since 2018 |
| Gail Kerner | Sr VP & General Counsel | 2018 |
| Grace Pavlath | Sr VP Scientific Program Director | 2018 |
| Henry Lanman | Sec. & Chief Legal Officer | since 2022 |
| Jeanne Zucker | SVP Healthcare Partnerships | since 2018 |
| Jennifer Allebach | SVP of Recreation and Camp Programs | since 2019 |
| Jonathon Nagle | Chief Technology Officer | 2020 |
| Joshua Ackley | VP of Pr & Communications | since 2020 |
| Julie Faber CPA | Asst. Treasurer & CFO (Jan) | 2018 |
| Karen Alexander | EVP, Chief Impact & Philanthropy Officer | 2018 |
| Karen Andrews | Secretary & Chief Legal Officer | since 2019 |
| Kathy Kauffmann | Chief Strategy Development Officer | since 2019 |
| Kathy Kauffmann Jan-AUG | Chief Strategy Development | 2021 |
| Kristin Stephenson | SVP, Chief Policy & Comm Engagement Officer | since 2018 |
| Kristine Welker | Chief of Staff | since 2021 |
| Lindsay Kassof | Sec. & Assoc Legal Counsel | since 2020 |
| Meredith Wilson | VP, Healthcare Communications & Education | 2019 |
| Michael Bruno | Chief People and Administrative Officer | 2019 |
| Michael Kennedy | Treasurer & CFO | since 2019 |
| Michael Kennedy MAR-DEC | Asst. Treasurer, Asst. Sec. & CFO | 2018 |
| Monica Pappas | VP, Technology | since 2022 |
| Nora Capocci | VP, Healthcare Services | 2023 |
| Peripedes Gondim | VP, Human Resources & Volunteers | 2023 |
| Sharon Hesterlee | Chief Research Officer | since 2020 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Donald Wood | Outgoing President & CEO | 50 | $662k | $17k | |
| Sharon Hesterlee | President & CEO | 50 | $422k | $71k | |
| Henry Lanman | COO & Chief Legal Officer | 50 | $380k | $56k | |
| Ruth Dailey | Chief Development Officer | 50 | $304k | $30k | |
| Mary Roth | Chief Marketing Officer | 50 | $259k | $55k | |
| Peripedes Gondim | Outgoing EVP, HR & Volunteers | 50 | $236k | $15k | |
| Nora Capocci | EVP, Healthcare Services | 50 | $228k | $24k | |
| Angela Lek | Chief Research Officer | 50 | $222k | $14k | |
| Jon van Cott | Interim CFO & Controller | 50 | $213k | $48k | |
| Michael Kennedy | Outgoing Treasurer & CFO | 50 | $158k | $12k | |
| Anjan Aralihalli | Director | 1 | $0 | ||
| Barry Byrne MD PhD | Director | 1 | $0 | ||
| Benjamin Cumbo III | Director | 1 | $0 | ||
| Charles D Schoor Esq | Director | 1 | $0 | ||
| Christopher Rosa | Vice Chairman | 5 | $0 | ||
| Dan Fries | Director | 1 | $0 | ||
| Elizabeth McNally MD PhD | Director | 1 | $0 | ||
| Governor Brad Henry | Chairman | 5 | $0 | ||
| Hon Robert E Pipia | Director | 1 | $0 | ||
| John Costantino | Director | 1 | $0 | ||
| John E Howell | Director | 1 | $0 | ||
| Lilian Wu PhD | Director | 1 | $0 | ||
| Louis Kunkel PhD | Director | 1 | $0 | ||
| Mark Smith | Director | 1 | $0 | ||
| Matt Plummer | Director | 1 | $0 | ||
| Mike Rowlett | Outgoing Director | 1 | $0 | ||
| Nancy Kindelan | Director | 1 | $0 | ||
| Steve Furnary | Director | 1 | $0 | ||
| Tom Simon | Director | 1 | $0 |
Colorado roster
23 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263026858). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Dan Fries | Director |
| Elizabeth McNally | Director |
| Christopher Rosa | Vice Chairman |
| Charles D. Schoor | Director |
| Robert E. Pipia | Director |
| Matt Plummer | Director |
| Benjamin Cumbo III | Director |
| John Costantino | Director |
| Louis Kunkel, PhD | Director |
| Tom Simon | Director |
| Barry Byrne MD,Ph.D. | Director |
| Kournetas Pamela | CFO |
| Sharon Hesterlee | President |
| Sharon Hesterlee | President/CEO |
| John Howell | Director |
| Nancy Kindelan | Director |
| Kournetas Pamela | |
| Governor Brad Henry | Chairman |
| Steve Furnay | Director |
| Lilian Wu, PhD | Director |
| Mark Smith | Director |
| Henry Lanman | Secretary |
| Anjan Aralihalli | Director |
About
- Legal name
- Muscular Dystrophy Association
- EIN
- 131665552
- Address
- 1016 W Jackson Blvd 1073, Chicago, IL, 60607-2914
- State
- Illinois
- Mission
- Muscular dystrophy association (mda) is the #1 voluntary health organization in the united states for people living with muscular dystrophy, als, and related neuromuscular diseases. (cont. Schedule o) for over 70 years, mda has led the way in accelerating research, advancing care, and advocating for the support of our families. Mda's mission is to empower the people we serve to live longer... (as filed on the Form 990)
- Activity (NTEE)
- G50 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 9 (IRS master file code)
- Formed
- 1950
- Principal officer
- Sharon Hesterlee PhD (as named on the Form 990)
- IRS ruling date
- 1 July 1952
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsGovernor Brad Henry
≥8years on the filingsBenjamin Cumbo III
≥8years on the filingsCharles D Schoor ESQ
≥8years on the filingsChristopher J Rosa PHD
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $50.9m
- Total liabilities
- $41.2m
- Net assets or fund balances
- $9.7m
- Contributions and grants received
- $54.4m
- Program service revenue
- $0
- Grants and similar paid out
- $14.1m
- Employees
- 272
- Volunteers
- 934