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Governance Register
US nonprofit · EIN 133709252 · Washington, DCiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 133709252) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990EZ for the year to 30 June 2025: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code SOUNK), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

The Leukemia & Lymphoma Society Research Foundation's network

3 people1 organisationi3 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (3). Violet dotted lines (3) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

3 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record.
NameRole as filedSinceOn the board
Alessandra Tocco ChairChair2025
1 yr
Freda WangVice Chair2023
3 yrs
Marla PerskySecretary/Treasurer2025
1 yr
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

3 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
E Anders KolbPresident & CEOsince 2024
E Anders Kolb - Start 512023President & CEO2023
Louis J Degennaro - End 6302023President & CEO2023

Pay and hours

year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Alessandra ToccoChair0$0
Freda WangVice Chair0$0
Janice Gabrilove MDAt Large0$0
Marla PerskySecretary/Treasurer0$0
E Anders KolbPresident & CEO0$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
The Leukemia & Lymphoma Society Research Foundation
EIN
133709252
Address
1201 15th St Nw Ste 410, Washington, DC, 20005-2899
State
District of Columbia
Activity (NTEE)
G053 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
1 (IRS master file code)
IRS ruling date
1 November 1993
Status
Code 01 (unconditional exemption)
Form 990 filings on record
8, latest 2025
IRS Publication 78
SOUNK (contributions deductible)

Most connected

Longest observed on the filings

≥3years on the filingsFreda Wang
≥1years on the filingsAlessandra Tocco
≥1years on the filingsMarla Persky

Latest return

year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.
Total assets
$0
Total liabilities
$0
Net assets or fund balances
$0

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2023$0$0$0

As filed on the IRS Form 990. US dollars.