Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United KingdomIrelandUnited States (current)New ZealandCanadaAustraliaScotlandNorthern Ireland
US nonprofit · EIN 136093337 · New York, NYiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 136093337) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 30 September 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Cerebral Palsy Foundation Inc

Donations deductible
Revenue
$4.5m
year to 30 September 2025
Expenses
$5.3m
year to 30 September 2025
Total assets
$2.1m
$353k liabilities
Net assets
$1.7m
assets less liabilities
Directors and trustees
14
2.4 years on average
Staff
7
33 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
3
named in Part VII
How am I connected?

Cerebral Palsy Foundation Inc's network

14 people3 organisationsi14 people and 3 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (14). Violet dotted lines (3) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

14 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 13 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
ILA Eckhoff ChairChairman2024
2 yrs
Dr Andrea DuncanDirector2024
2 yrs
Dr Deborah Gaebler-SpiraDirector2024
2 yrs
Eileen FowlerDirector2024
2 yrs
Gerald DundonDirector2024
2 yrs
James P VolckerV.P & Secretary2024
2 yrs
Kara BuckleyDirector2024
2 yrs
Levee BrooksDirector2024
2 yrs
Lily CollisonDirector2024
2 yrs
Michelle KassnerDirector2024
2 yrs
Patrick DownesTreasurer2024
2 yrs
Peter W ShapiroDirector2024
2 yrs
Rachel JordanExecutive Director2024
2 yrs
Wendy GarfinkelDirector (Until 11/2023)2024
2 yrs
Under 5 years5 to 6 years6 years or moreShow all 14 →

Officers and senior leadership

3 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Cynthia FrisinaVice President of Partnerships2024
Deborah FinkVP of Education and Inclusion2024
Rebecca LAMVP of Programs and Operations2024

Pay and hours

year to 30 September 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Rachel JordanExecutive Director37.5$225k$12k
Cynthia FrisinaVice President of Partnerships37.5$140k$7k
Rebecca LamVP of Programs and Operations37.5$123k$19k
Ila EckhoffChairman1$0
James P VolckerV.P & Secretary1$0
Patrick DownesTreasurer1$0
Dr Andrea DuncanDirector1$0
Dr Deborah Gaebler-SpiraDirector1$0
Eileen FowlerDirector1$0
Gerald DundonDirector1$0
Kara BuckleyDirector1$0
Levee BrooksDirector1$0
Lily CollisonDirector1$0
Michelle KassnerDirector1$0
Peter W ShapiroDirector1$0

Colorado roster

15 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253024932). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Michelle KassnerDirector
Rebecca LamVP of Programs & Operations
Dr. Andrea DuncanDirector
Deborah Gaebler-SpiraDirector
Rachel JordanExecutive Director
Ila EckhoffChair of the Board
Lily CollisonDirector
Cynthia FrisinaSenior VP of Strategic Partnerships
James P VolckerVice President & Secretary
Kara BuckleyDirector
Peter William ShapiroDirector
Patrick P DownesTreasurer
Rachel Jordan
Gerald DundonDirector
Levee BrooksDirector

About

Legal name
Cerebral Palsy Foundation Inc
EIN
136093337
Address
3 Columbus Circle 15th Floor, New York, NY, 10019-8720
State
New York
Mission
The foundation develops and spearheads initiatives designed to change lives today for people with cerebral palsy through research, innovation, and collaboration. (as filed on the Form 990)
Activity (NTEE)
H23Z Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
6 (IRS master file code)
Formed
1955
IRS ruling date
1 February 1957
Status
Code 01 (unconditional exemption)
Form 990 filings on record
1, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥2years on the filingsILA Eckhoff
≥2years on the filingsDr Andrea Duncan
≥2years on the filingsDr Deborah Gaebler-Spira
≥2years on the filingsEileen Fowler

Latest return

year to 30 September 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 September 2025. US dollars, as filed.
Total assets
$2.1m
Total liabilities
$353k
Net assets or fund balances
$1.7m
Contributions and grants received
$4m
Program service revenue
$445k
Grants and similar paid out
$3.2m
Employees
7
Volunteers
33

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2023$4.7m$4.7m$2k

As filed on the IRS Form 990. US dollars.

Grants paid

8 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
The Regents of the University of California Los Angeles$351k
Emory University$228k
Gillette Children's Healthcare$117k
Hugo W Moser Research Institute at Kennedy Krieger$72k
The Children's Hospital of Philadelphia Research Institute$63k
Ann & Robert Lurie Children's Hospital of Chicago$50k
Columbia University$50k
University of Utah$41k

State registration

1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.
Cerebral Palsy Foundation, Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: New York Department of State, active corporations (data.ny.gov n9v6-gdp6). Licence: New York open data terms of use. Data last fetched 18 October 2026.
State
New York
Entity type
Domestic Not-For-Profit Corporation
Status
Active
Formed
30 June 1955
Registered agent
United Cerebral Palsy Research And Educational Foundation, I (city and state not held)