Osteogenesis Imperfecta Foundation Inc
Donations deductibleOsteogenesis Imperfecta Foundation Inc's network
15 peoplei15 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (15). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
15 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 15 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Billy Huang | Board Member | 2023 | 3 yrs |
| Christine Wyman Rossi (also filed as Christine Rossi) | President | 2019 | 7 yrs |
| Cindy Medina | Board Member | 2025 | 1 yr |
| Emily F Voorde | Board Member | 2025 | 1 yr |
| James Sharples | Treasurer | 2022 | 4 yrs |
| Julie Hocker | Board Member | 2025 | 1 yr |
| Kara B Ayers PHD (also filed as Kara Ayers, Kara B Ayers) | Vice President | 2019 | 7 yrs |
| Karen Braitmayer | Company secretary | 2022 | 4 yrs |
| Kenneth Finkel (also filed as Ken Finkel) | Vice President | 2019 | 7 yrs |
| Michael Sheridan | Board Member | 2021 | 5 yrs |
| Michelle Fynan | Vice President | 2022 | 4 yrs |
| Scott Walls | Board Member | 2025 | 1 yr |
| Tony Jacobsen | Board Member | 2025 | 1 yr |
| V Reid Sutton MD (also filed as V Reid Sutton) | Board Member | 2022 | 4 yrs |
| Wendy E Sacks (also filed as Wendy Sacks) | Board Member | 2021 | 5 yrs |
Officers and senior leadership
4 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Erika Carter | Chief Program Officer | 2021 |
| Katherine E Carter | Chief Program Officer | since 2022 |
| Marcial T Costanzo | Director of Finance | 2019 |
| Tracy Smith Hart | Chief Executive Officer | since 2019 |
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Tracy Smith Hart | Chief Executive Officer | 40 | $215k | $30k | |
| Katherine E Carter | Chief Program Officer | 40 | $136k | $7k | |
| Christine Wyman Rossi | President | 2 | $0 | ||
| Kara B Ayers | Vice President | 2 | $0 | ||
| Kenneth Finkel | Vice President | 2 | $0 | ||
| Michelle Fynan | Vice President | 2 | $0 | ||
| James Sharples | Treasurer | 2 | $0 | ||
| Karen Braitmayer | Secretary | 2 | $0 | ||
| Julie Hocker | Board Member | 2 | $0 | ||
| Billy Huang | Board Member | 2 | $0 | ||
| Tony Jacobsen | Board Member | 2 | $0 | ||
| Cindy Medina | Board Member | 2 | $0 | ||
| Wendy E Sacks | Board Member | 2 | $0 | ||
| Michael Sheridan | Board Member | 2 | $0 | ||
| V Reid Sutton | Board Member | 2 | $0 | ||
| Emily F Voorde | Board Member | 2 | $0 | ||
| Scott Walls | Board Member | 2 | $0 |
Colorado roster
20 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253028204). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Melissa Bonardi | Director of Development |
| Karen Braitmayar | Director |
| Janeen Hamad | |
| Tracy Smith Hart | Chief Executive Officer |
| Christine Wyman Rossi | Vice President |
| S. Jacinta Whyte | Director |
| V. Reid Sutton | Director |
| Sharon Mutnick | Treasurer |
| Tracy L. Mulroy | Director |
| Edward Trahan | President |
| Michelle Fynan | Director |
| James Jamie Sharples | Director |
| Katherine E. Carter | Chief Program Officer |
| James E. Early | Vice President |
| Francis Glorieux | Chairman - Medical Advisory Council |
| Billy Huang | Board Member |
| Michael Sheridan | Director |
| Wendy E. Sacks | Director |
| Janeen Hamad | Finance Manager |
| Kenneth Finkel | Secretary |
About
- Legal name
- Osteogenesis Imperfecta Foundation Inc
- EIN
- 237076021
- Address
- 656 Quince Orchard Rd Ste 650, Gaithersburg, MD, 20878-0007
- State
- Maryland
- Mission
- Our mission is to improve the quality of life for people affected by oi through research to find treatments and a cure, education, awareness, and mutual support. There are at least four distinct forms of osteogenesis imperfecta representing extreme variations in severity and affecting 20,000 to 40,000 people in the united states. (as filed on the Form 990)
- Activity (NTEE)
- H50J Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 6 (IRS master file code)
- Formed
- 1970
- Principal officer
- Tracy Smith Hart (as named on the Form 990)
- IRS ruling date
- 1 November 1970
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 7, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥7years on the filingsChristine Wyman Rossi
≥7years on the filingsKara B Ayers PHD
≥7years on the filingsKenneth Finkel
≥5years on the filingsMichael Sheridan
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $1.7m
- Total liabilities
- $293k
- Net assets or fund balances
- $1.4m
- Contributions and grants received
- $2.1m
- Program service revenue
- $216k
- Grants and similar paid out
- $389k
- Employees
- 13
- Volunteers
- 53
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2023 | $2.3m | $2.5m | Deficit $179k |
As filed on the IRS Form 990. US dollars.
Grants paid
3 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| The Regents of the University California Los Angeles | Fellowship grant | $50k |
| Boston Children's Hospital | Fellowship grant | $50k |
| University of South Florida | Contact registry | $25k |