Epilepsy Association
Donations deductibleEpilepsy Association's network
23 people5 organisationsi23 people and 5 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (23). Violet dotted lines (5) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
23 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 28 voting members of its governing body on its latest Form 990 Part VI; we list 23 in Part VII (Part VII does not always name every voting member).| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Adam Zuccaro | Director | 2020 | 6 yrs |
| April Kingsbury Walsh | Director | 2018 | 8 yrs |
| Ben Young | Director | 2018 | 8 yrs |
| Brittany Folino | Director | 2022 | 4 yrs |
| Courtney Schmidt | Director | 2018 | 8 yrs |
| Diane M Spirnak (also filed as Diane Spirnak) | Director | 2018 | 8 yrs |
| Guadalupe Fernandez-Baca Vaca MD | Director | 2018 | 8 yrs |
| Jeffery Karlovec | Director | 2018 | 8 yrs |
| Joseph Murlin | Director | 2022 | 4 yrs |
| JUN T Park MD (also filed as JUN Park MD) | Director | 2018 | 8 yrs |
| Karen P Johnson (also filed as Karen Johnson) | Director | 2018 | 8 yrs |
| Louis Broussard | Director | 2022 | 4 yrs |
| Marquettes D Robinson (also filed as Marquettes Robinson) | Director | 2018 | 8 yrs |
| Marvin Rossi | Director | 2023 | 3 yrs |
| Michael Blake | Director | 2018 | 8 yrs |
| Mike Barrett | Director | 2022 | 4 yrs |
| Richard Bass | Director | 2018 | 8 yrs |
| Rocco Dipuccio | Director | 2018 | 8 yrs |
| Sean Medina | Director | 2023 | 3 yrs |
| Stephen Hantus MD | Director | 2018 | 8 yrs |
| Susan D Krantz (also filed as Susan Krantz) | Director | 2018 | 8 yrs |
| Takiyah Durham | Director | 2023 | 3 yrs |
| Travis Okel | Director | 2023 | 3 yrs |
Officers and senior leadership
6 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Carole Barita | Company secretary | since 2022 |
| Kelley S Needham | CEO | since 2018 |
| Mark Holcomb | Vice President | since 2022 |
| Patricia Varanese | Ed | 2023 |
| Sarah Salisbury | Treasurer | since 2022 |
| Susan Stamberger | President | since 2022 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Patricia Varanese | Executive Director | 40 | $84k | $9k | |
| Susan Stamberger | Director | 1 | $0 | ||
| Ben Young | Director | 1 | $0 | ||
| Brittany Folino | Director | 1 | $0 | ||
| Louis Broussard | Director | 1 | $0 | ||
| Mike Barrett | Director | 1 | $0 | ||
| Richard Bass | Director | 1 | $0 | ||
| Karen Johnson | Director | 1 | $0 | ||
| Sean Medina | Director | 1 | $0 | ||
| Jeffery Karlovec | Director | 1 | $0 | ||
| Susan Krantz | Director | 1 | $0 | ||
| Takiyah Durham | Director | 1 | $0 | ||
| Michael Slagle | Director | 1 | $0 | ||
| Marquettes Robinson | Director | 1 | $0 | ||
| Adam Zuccaro | Director | 1 | $0 | ||
| Rocco Dipuccio | Director | 1 | $0 | ||
| Stephen Hantus MD | Director | 1 | $0 | ||
| Guadalupe Fernandez-Baca Vaca | Director | 1 | $0 | ||
| Jun Park MD | Director | 1 | $0 | ||
| Diane Spirnak | Director | 1 | $0 | ||
| Linda Wieser | Director | 1 | $0 | ||
| Travis Okel | Director | 1 | $0 | ||
| Marvin Rossi | Director | 1 | $0 | ||
| Deanna Murlin | Director | 1 | $0 | ||
| Sheryl Nehamkin | Director | 1 | $0 | ||
| Natalia Jamison | Director | 1 | $0 | ||
| Diana Cipriani | Director | 1 | $0 | ||
| Joseph Murlin | Treasurer | 1 | $0 | ||
| Sarah Salisbury | Vice President | 1 | $0 | ||
| Mark Holcomb | President | 1 | $0 | ||
| April Kingsbury Walsh | Secretary | 1 | $0 |
About
- Legal name
- Epilepsy Association
- EIN
- 237198807
- Address
- 2800 Euclid Avenue Suite 402, Cleveland, OH, 44115-2408
- State
- Ohio
- Mission
- Epilepsey association raises awareness for children, adults and families in northeast ohio that are impacted by epilepsy in the community, provide education, advocacy and direct services thatlead to an increased understanding of the disorder and to better management of the condition, resilience, personal fulfillment, independence and the ability to contribute meaningfully to the community. (as filed on the Form 990)
- Activity (NTEE)
- G54Z Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 6 (IRS master file code)
- Formed
- 1972
- Principal officer
- Patricia Veranese (as named on the Form 990)
- IRS ruling date
- 1 November 1972
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsApril Kingsbury Walsh
≥8years on the filingsBen Young
≥8years on the filingsCourtney Schmidt
≥8years on the filingsDiane M Spirnak
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $1.4m
- Total liabilities
- $81k
- Net assets or fund balances
- $1.3m
- Contributions and grants received
- $447k
- Program service revenue
- $199k
- Employees
- 8
- Volunteers
- 110