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Governance Register
US nonprofit · EIN 237337229 · Clarksburg, MDiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 237337229) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 March 2025: assets, liabilities, staff, website, telephone, pay, related organisations (Schedule R), grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Brightfocus Foundation's network

14 people2 organisationsi14 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (14). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

14 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 14 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Patricia M Stewart ChairChair2019
7 yrs
Adam MyersDirector As of 04/242025
1 yr
Ann SeclowDirector2024
2 yrs
Cecilia ArradazaVice Chair Until 06/24, Director2019
7 yrs
Dale YoungDirector As of 03/252025
1 yr
Dana GriffinDirector2022
4 yrs
Herbert L Drayton IIIDirector2024
2 yrs
Jan M Stouffer PHDDirector2019
7 yrs
John PennDirector As of 03/252025
1 yr
Paul CampbellDirector2023
3 yrs
Scott Kaiser MDSecretary Until 06/24, Vice Chair2020
6 yrs
Shawna GottliebTreasurer2025
1 yr
Thomas F Freddo OD PHDDirector Until 06/24, Secretary2024
2 yrs
Tonya Matthews PHDDirector2021
5 yrs
Under 5 years5 to 6 years6 years or moreShow all 14 →

Officers and senior leadership

20 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Alice KirkmanCommunications Manager2020
AYO Abraham CPAControllersince 2021
AYO Abraham CPA CgmaController Until 8/2023since 2023
David F Marks CPA CMAVP, Finance & Administrationsince 2019
Diane Bovenkamp PHDVP, Scientific Affairssince 2019
Edward BergerManager of Online Operationssince 2020
Jeffrey HonakerSr. MGR. Ops and Buildingsince 2020
Jonathan WalshSVP, Finance & Administration2025
Kaci BaezVP, Integrated Mkting & Comm.since 2023
Kaci Baez - VP IntegratedMkting & Comm. Until 06/242025
Keith Whitaker DIR ofScient. Programs, Neuroscience2020
Lisa MorganSenior Director, Annual Givingsince 2022
Michael BuckleyVP, Public Affairssince 2019
Nancy KeachSr. VP, Strategic Partnerships2025
Nancy LynnSr. VP Strategic Partnershipssince 2019
Preeti Subramanian - PHD DIROf Scient. Programs, Vision Sciencesince 2023
Preeti Subramanian DIR ofScient. Programs, Vision Sciencesince 2020
R Brian EldertonSr. VP, Developmentsince 2019
Sharyn Rossi - PHD DIR ofScient. Programs, Neurosciencesince 2023
Stacy Pagos HallerPresident/CEOsince 2019

Pay and hours

year to 31 March 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Stacy Pagos HallerPresident/CEO45$425k$47k
Nancy KeachSr. VP, Strategic Partnerships45$270k$52k
R Brian EldertonSr. VP, Development45$261k$40k
Jonathan WalshSVP, Finance & Administration45$227k$4k
Diane Bovenkamp PhDVP, Scientific Affairs45$196k$24k
Preeti Subramanian - PhD DirOf Scient. Programs, Vision Science40$140k$16k
Lisa MorganSenior Director, Annual Giving40$135k$23k
Sharyn Rossi - PhD Dir ofScient. Programs, Neuroscience40$126k$42k
Jeffrey HonakerSr. MGR. Ops and Building40$115k$34k
Kaci Baez - VP IntegratedMkting & Comm. Until 06/2445$111k$9k
Patricia M StewartChair10$0
Scott Kaiser MDSecretary Until 06/24, Vice Chair6$0
Thomas F Freddo Od PhDDirector Until 06/24, Secretary6$0
Shawna GottliebTreasurer6$0
Cecilia ArradazaVice Chair Until 06/24, Director6$0
Paul CampbellDirector5$0
Herbert L Drayton IIIDirector5$0
Dana GriffinDirector5$0
Tonya Matthews PhDDirector5$0
Ann SeclowDirector5$0
Jan M Stouffer PhDDirector6$0
Adam MyersDirector As of 04/245$0
John PennDirector As of 03/255$0
Dale YoungDirector As of 03/255$0

Colorado roster

26 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253034762). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
John PennDirector As of 03/25
Diane Bovemkamp, PhDVP, Scientific Affairs
Ann SeclowDirector
Shawna GottliebTreasurer
R. Brian EldertonSr. VP, Development
Thomas F. FreddoDirector Until 06/24, Secretary
Paul CampbellDirector
Patricia M StewardChair
Nancy KeachSr. VP, Strategic Partnerships
Kaci BaezVP, Integrated Mkting & Comm. Until 06/24
Adam MyersDirector As of 04/24
Subramanian PreetiPh. Dir. of Scient. Programs, Vision Science
Dana GriffinDirector
Dale YoungDirector As of 03/25
Jan M. Stouffer, PhDDirector
Jon Walsh
Sharyn RossiScient. Programs, Neuroscience
Herbert L Drayton IIIDirector
Lisa MorganSenior Director, Annual Giving
Jonathan WalshSVP, Finance & Administration
Cecilia ArradazaVice Chair Until 06/24, Director
Stacy Pagos HallerPresident/CEO
Tonya Matthews, PhDDirector
Stacy Pagos HallerPresident
Scott Kaiser, MDSecretary Until 06/24, Vice Chair
Jeffrey HonakerSr. MGR. Ops and Building

About

Legal name
Brightfocus Foundation
EIN
237337229
Address
22512 Gateway Center Dr, Clarksburg, MD, 20871-2005
State
Maryland
Mission
Brightfocus foundation funds exceptional research worldwide to defeat alzheimer's disease, macular degeneration, and glaucoma and provides expert information on these heartbreaking diseases. Please refer to schedule o for a complete overview of our mission. (as filed on the Form 990)
Activity (NTEE)
G00J Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
9 (IRS master file code)
Formed
1973
Principal officer
Stacy Pagos Haller (as named on the Form 990)
IRS ruling date
1 January 1974
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2025
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥7years on the filingsPatricia M Stewart
≥7years on the filingsCecilia Arradaza
≥7years on the filingsJan M Stouffer PHD
≥6years on the filingsScott Kaiser MD

Latest return

year to 31 March 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 March 2025. US dollars, as filed.
Total assets
$65.1m
Total liabilities
$28.2m
Net assets or fund balances
$37m
Contributions and grants received
$52.9m
Program service revenue
$0
Grants and similar paid out
$16.9m
Employees
59
Volunteers
85

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$63.4m$53.3m$10.1m

As filed on the IRS Form 990. US dollars.

Grants paid

25+ listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
William Marsh Rice UniversityMacular degeneration research by jerzy szablowski, phd entitled: m2025001n$410k
University of Oklahoma Health Sciences CenterMacular degeneration research by ana j chucair-elliott, phd entitled: m2025002n$410k
Leland Stanford Junior UniversityMacular degeneration research by charles deboer, md, phd entitled: m2025004n$410k
Leland Stanford Junior UniversityMacular degeneration research by mohajeet balveer bhuckory, phd entitled: m2025007n$410k
National Eye Institute NihMacular degeneration research by ruchi sharma, phd entitled: m2025003n$409k
Beth Israel Deaconess Medical CenterAlzheimer's disease research by peter fried, phd entitled: a2024034s$300k
Leland Stanford Junior UniversityAlzheimer's disease research by amira latif hernandez, phd entitled: a2024035s$300k
University of California San DiegoAlzheimer's disease research by jerome mertens, phd entitled: a2024036s$300k
University of Washington School of MedicineAlzheimer's disease research by justin miller, phd entitled: a2024037s$300k
University of California San DiegoAlzheimer's disease research by johannes schlachetzki, md entitled: a2024038s$300k
University of Kentucky Research FoundationAlzheimer's disease research by linda van eldik, phd entitled: a2024039s$300k
Vanderbilt University Medical CenterAlzheimer's disease research by monica santisteban, phd entitled: a2025011s$300k
The J David Gladstone InstitutesAlzheimer's disease research by katerina akassoglou, phd entitled: a2025013s$300k
Massachusetts General HospitalAlzheimer's disease research by ksenia kastanenka, phd entitled: a2025014s$300k
Columbia UniversityAlzheimer's disease research by jae-eun miller, phd entitled: a2025016s$300k
Northwestern University - Chicago CampusAlzheimer's disease research by justyna dobrowolska zakaria, phd entitled: a2025019s$300k
Washington University in StlouisAlzheimer's disease research by cyril pottier, phd entitled: a2025020s$300k
Research Foundation of Suny - University at AlbanyAlzheimer's disease research by damian zuloaga, phd entitled: a2025021s$300k
Icahn School of Medicine at Mount SinaiAlzheimer's disease research by jack humphrey, phd entitled: a2025024s$300k
The Ohio State UniversityAlzheimer's disease research by hongjun fu, phd entitled: a2025025s$300k
The University of North Carolina at Chapel HillAlzheimer's disease research by todd j. Cohen, phd entitled: a2025026s$300k
Indiana UniversityAlzheimer's disease research by miguel moutinho, pharmd, phd entitled: a2025015s$300k
Beth Israel Deaconess Medical CenterAlzheimer's disease research by feng tian, phd entitled: a2025017s$300k
Indiana UniversityAlzheimer's disease research by rebecca wallings, dphil entitled: a2025023s$298k
Mayo Clinic JacksonvilleAlzheimer's disease research entitled: ca2021010$235k