Turner Syndrome Foundation Inc
Donations deductibleTurner Syndrome Foundation Inc's network
10 people1 organisationi10 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 7 voting members of its governing body on its latest Form 990 Part VI; we list 10 in Part VII (Part VII does not always name every voting member).| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Danielle Moorephd | Trustee | 2024 | 2 yrs |
| Dawn Petr | Trustee | 2018 | 8 yrs |
| Doreen Sullivan | Treasurer | 2018 | 8 yrs |
| Janis H Elwell | Trustee | 2020 | 6 yrs |
| Kayla Marie Ganger PA-C | Trustee | 2024 | 2 yrs |
| Laura Fasciano | President | 2018 | 8 yrs |
| Lorraine Kobular | Vice President | 2020 | 6 yrs |
| Mary Gwyn Roper MD | Trustee | 2024 | 2 yrs |
| Michael McDowell | Trustee | 2025 | 1 yr |
| Suzanne Bousquetpsyd | Company secretary | 2024 | 2 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Laura Fasciano | President | 100 | $61k | ||
| Suzanne Bousquetpsyd | Secretary | 5 | $0 | ||
| Doreen Sullivan | Treasurer | 5 | $0 | ||
| Danielle Moorephd | Trustee | 5 | $0 | ||
| Dawn Petr | Trustee | 5 | $0 | ||
| Janis H Elwell | Trustee | 5 | $0 | ||
| Lorraine Kobular | Vice President | 5 | $0 | ||
| Mary Gwyn Roper MD | Trustee | 5 | $0 | ||
| Kayla Marie Ganger Pa-C | Trustee | 5 | $0 | ||
| Michael McDowell | Trustee | 5 | $0 |
About
- Legal name
- Turner Syndrome Foundation Inc
- EIN
- 271409942
- Address
- 1 Bethany Rd Bldg 1 Suite 5, Hazlet, NJ, 07730-1659
- State
- New Jersey
- Mission
- (as filed on the Form 990)
- Activity (NTEE)
- G01 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 3 (IRS master file code)
- Formed
- 2009
- Principal officer
- Laura Fasciano (as named on the Form 990)
- IRS ruling date
- 1 April 2010
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 7, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsDawn Petr
≥8years on the filingsDoreen Sullivan
≥8years on the filingsLaura Fasciano
≥6years on the filingsJanis H Elwell
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $75k
- Total liabilities
- $11k
- Net assets or fund balances
- $64k
- Contributions and grants received
- $280k
- Program service revenue
- $0
- Employees
- 5
- Volunteers
- 300
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2023 | $159k | $152k | $8k |
As filed on the IRS Form 990. US dollars.