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Governance Register
US nonprofit · EIN 300964243 · Brush Prairie, WAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 300964243) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 May 2024: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Adnp Kids Research Foundation's network

3 peoplei3 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (3). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

3 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 4 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Debbie AbrahamCompany secretary2021
5 yrs
Genie Egerton-WarburtonVice President2021
5 yrs
Tim MosierTreasurer2021
5 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

4 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Debbie AbrahamCompany secretarysince 2022
Genie Egerton-WarburtonVice Presidentsince 2022
Sandra SermonePresident/CEOsince 2021
Tim MosierTreasurersince 2022

Pay and hours

year to 31 May 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Sandra SermonePresident30$0
Genie Egerton-WarburtonVice President0.5$0
Tim MosierTreasurer0.25$0
Debbie AbrahamSecretary0.25$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Adnp Kids Research Foundation
EIN
300964243
Address
24500 Ne 132nd Cir, Brush Prairie, WA, 98606-7220
State
Washington
Mission
Rare disease support patient and disease advocacy patient and disease education scientific research drug development funding of treatment studies and drug trials for treatment of ADNP syndrome. (as filed on the Form 990)
Activity (NTEE)
H11 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
4 (IRS master file code)
Formed
2016
IRS ruling date
1 March 2017
Status
Code 01 (unconditional exemption)
Form 990 filings on record
1, latest 2021
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥5years on the filingsDebbie Abraham
≥5years on the filingsGenie Egerton-Warburton
≥5years on the filingsTim Mosier

Latest return

year to 31 May 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 May 2024. US dollars, as filed.
Total assets
$428k
Total liabilities
$0
Net assets or fund balances
$428k
Contributions and grants received
$1.1m
Program service revenue
$0
Grants and similar paid out
$1.1m
Employees
0
Volunteers
5

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2023$1.1m$1.1mDeficit $10k

As filed on the IRS Form 990. US dollars.

Grants paid

3 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
UC Davis MIND Institute3 gene therapy investigations and mouse model characterization$1m
RareBaseFinal work on High Throughput Screening Repurposed Drug-Treatment Investigation$38k
Seaver Center Mount SinaiPreclinical work on low throughput animal model work neuron biomarkers and grant work for KET$26k