Adnp Kids Research Foundation
Donations deductibleAdnp Kids Research Foundation's network
3 peoplei3 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (3). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
3 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 4 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Debbie Abraham | Company secretary | 2021 | 5 yrs |
| Genie Egerton-Warburton | Vice President | 2021 | 5 yrs |
| Tim Mosier | Treasurer | 2021 | 5 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
4 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Debbie Abraham | Company secretary | since 2022 |
| Genie Egerton-Warburton | Vice President | since 2022 |
| Sandra Sermone | President/CEO | since 2021 |
| Tim Mosier | Treasurer | since 2022 |
Pay and hours
year to 31 May 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Sandra Sermone | President | 30 | $0 | ||
| Genie Egerton-Warburton | Vice President | 0.5 | $0 | ||
| Tim Mosier | Treasurer | 0.25 | $0 | ||
| Debbie Abraham | Secretary | 0.25 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Adnp Kids Research Foundation
- EIN
- 300964243
- Address
- 24500 Ne 132nd Cir, Brush Prairie, WA, 98606-7220
- State
- Washington
- Mission
- Rare disease support patient and disease advocacy patient and disease education scientific research drug development funding of treatment studies and drug trials for treatment of ADNP syndrome. (as filed on the Form 990)
- Activity (NTEE)
- H11 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 4 (IRS master file code)
- Formed
- 2016
- IRS ruling date
- 1 March 2017
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 1, latest 2021
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥5years on the filingsDebbie Abraham
≥5years on the filingsGenie Egerton-Warburton
≥5years on the filingsTim Mosier
Latest return
year to 31 May 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 May 2024. US dollars, as filed.- Total assets
- $428k
- Total liabilities
- $0
- Net assets or fund balances
- $428k
- Contributions and grants received
- $1.1m
- Program service revenue
- $0
- Grants and similar paid out
- $1.1m
- Employees
- 0
- Volunteers
- 5
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2023 | $1.1m | $1.1m | Deficit $10k |
As filed on the IRS Form 990. US dollars.
Grants paid
3 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| UC Davis MIND Institute | 3 gene therapy investigations and mouse model characterization | $1m |
| RareBase | Final work on High Throughput Screening Repurposed Drug-Treatment Investigation | $38k |
| Seaver Center Mount Sinai | Preclinical work on low throughput animal model work neuron biomarkers and grant work for KET | $26k |