Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United KingdomIrelandUnited States (current)New ZealandCanadaAustraliaScotlandNorthern Ireland
US nonprofit · EIN 861108537 · Kirkland, WAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 861108537) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 May 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Friends of FSH Research

Donations deductible
Revenue
$864k
year to 31 May 2025
Expenses
$1.3m
year to 31 May 2025
Total assets
$450k
$97 liabilities
Net assets
$450k
assets less liabilities
Directors and trustees
11
6.7 years on average
Staff
0
50 volunteers
Left since last filing
0
no seats appear to have opened
Voting members
11
reported in Part VI
How am I connected?

Friends of FSH Research's network

11 peoplei11 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (11). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

11 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Amanda RickardBoard Member2019
7 yrs
Bradley H BagshawVice President2019
7 yrs
Chris HavenBoard Member2019
7 yrs
Elizabeth JASBoard Member2022
4 yrs
Erik SvensonBoard Member2022
4 yrs
George ShawCompany secretary2019
7 yrs
Karl VossBoard Member2019
7 yrs
Lynn FischerBoard Member2019
7 yrs
Premi HaynesBoard Member2021
5 yrs
Richard ColellaTreasurer2019
7 yrs
Teresa ColellaPresident2019
7 yrs
Under 5 years5 to 6 years6 years or moreShow all 11 →

Pay and hours

year to 31 May 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Teresa ColellaPresident12$0
Lynn FischerBoard Member6$0
Richard ColellaTreasurer12$0
Bradley H BagshawVice President2$0
George ShawSecretary10$0
Amanda RickardBoard Member3$0
Chris HavenBoard Member3$0
Karl VossBoard Member1$0
Premi HaynesBoard Member2$0
Elizabeth JasBoard Member1$0
Erik SvensonBoard Member1$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Friends of FSH Research
EIN
861108537
Address
217 19th Pl, Kirkland, WA, 98033-4903
State
Washington
Mission
Friends of fsh research a 501c3 organization is working to impact the lives of those affected by fsh muscular dystrophy by financially supporting fshd research (as filed on the Form 990)
Activity (NTEE)
H11 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
4 (IRS master file code)
Formed
2004
Principal officer
Teresa Colella (as named on the Form 990)
IRS ruling date
1 September 2004
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2025
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥7years on the filingsAmanda Rickard
≥7years on the filingsBradley H Bagshaw
≥7years on the filingsChris Haven
≥7years on the filingsGeorge Shaw

Latest return

year to 31 May 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 May 2025. US dollars, as filed.
Total assets
$450k
Total liabilities
$97
Net assets or fund balances
$450k
Contributions and grants received
$889k
Program service revenue
$0
Grants and similar paid out
$1.3m
Employees
0
Volunteers
50

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$864k$1.3mDeficit $453k

As filed on the IRS Form 990. US dollars.

Grants paid

15 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Fred Hutchinson Cancer ResearchResearch studies$164k
Histone TherapeuticsResearch studies$130k
Research Inst at Nationwide ChildreResearch studies$108k
University of NevadaResearch studies$100k
Fred Hutchinson Cancer ResearchResearch studies$88k
Histone TherapeuticsResearch studies$76k
Talus BioscienceResearch studies$75k
University of ColoradoResearch studies$45k
University of WashingtonResearch studies$45k
University of WashingtonResearch studies$45k
Uw Wellstone FundResearch studies$28k
Springbok AnalyticsResearch studies$20k
Talus BioscienceResearch studies$15k
Histone TherapeuticsResearch studies$6k
FSHD SocietyResearch studies$4k