Kcnq2 Cure Alliance Inc
Donations deductibleKcnq2 Cure Alliance Inc's network
5 peoplei5 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (5). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
5 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 5 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Caroline Loewy | Treasurer | 2018 | 8 yrs |
| Colin Sanford | Company secretary | 2024 | 2 yrs |
| Jim Johnson (also filed as Jim Johnson) | President | 2018 | 8 yrs |
| Matthew Fox | Director | 2024 | 2 yrs |
| Sara James | Vice President | 2022 | 4 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Jim Johnson | President | 5 | $0 | ||
| Sara James | Vice President | 5 | $0 | ||
| Caroline Loewy | Treasurer | 5 | $0 | ||
| Matthew Fox | Director | 0 | $0 | ||
| Colin Sanford | Secretary | 5 | $0 |
No pay was reported for anyone in Part VII on this return.
Colorado roster
5 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253025747). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Caroline Loewy | Treasurer |
| Sylvia Sims | |
| James Johnson | President |
| Sara James Butcher | Vice President |
| Colin Sanford | Secretary |
About
- Legal name
- KCNQ2 Cure Alliance Inc
- EIN
- 471810644
- Address
- 3700 Quebec St Unit 100 PMB 118, Denver, CO, 80207-1639
- State
- Colorado
- Mission
- KCNQ2 Cure Alliance is a non-profit organization dedicated to raising research funds for KCNQ2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for KCNQ2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families. (as filed on the Form 990)
- Activity (NTEE)
- G20 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 6 (IRS master file code)
- Formed
- 2015
- Principal officer
- Scotty Sims (as named on the Form 990)
- IRS ruling date
- 1 March 2015
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsCaroline Loewy
≥8years on the filingsJim Johnson
≥4years on the filingsSara James
≥2years on the filingsColin Sanford
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $1.2m
- Total liabilities
- $11k
- Net assets or fund balances
- $1.2m
- Contributions and grants received
- $388k
- Program service revenue
- $0
- Grants and similar paid out
- $15k
- Employees
- 0
- Volunteers
- 4
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $458k | $86k | $372k |
As filed on the IRS Form 990. US dollars.
Grants paid
1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| SynGAP Research Fund | KCNQ2 research | $15k |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.KCNQ2 Cure Alliance Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
- State
- Colorado
- Entity type
- nonprofit corporation
- Status
- Good Standing
- Formed
- 11 September 2014
- Registered agent
- KCNQ2 Cure Alliance Inc. (city and state not held)
This register does not publish officers or directors.