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US nonprofit · EIN 474456205 · Kansas City, KSiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 474456205) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Exemption status IRS Automatic Revocation of Exemption List (posted to 13 October 2026).Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Neuromuscular Study Group Inc

Donations deductible
Revenue
$589k
year to 31 December 2024
Expenses
$519k
year to 31 December 2024
Total assets
$531k
$0 liabilities
Net assets
$531k
assets less liabilities
Directors and trustees
8
3.5y av
Staff
0
employees, year to 31 December 2024
Left since last filing
0
no seats appear to have opened
Officers and senior staff
5
named in Part VII
Exemption reinstated on 15 May 2018. The IRS had automatically revoked it on 15 May 2018 (after three years without a return). Source: IRS Automatic Revocation of Exemption List, posted to 13 October 2026.
How am I connected?

Neuromuscular Study Group Inc's network

8 peoplei8 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 6 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Amanda Guidon MDInvestigator Member2024
2 yrs
Bhaskar Roy MBB MHSYoung Investigator Member2024
2 yrs
Emma Ciafaloni MD FaanDirector2024
2 yrs
James Lilleker Mbchb Mrcp PhDInvestigator Member2024
2 yrs
John Vissing MDInvestigator Member2024
2 yrs
Michael Hehir MDInvestigator Member2020
6 yrs
Michael McDermott PHD (also filed as Michael McDermott PhD)Biostatistician2019
7 yrs
Michaela Walker MPH CcrpCoordinator Member2024
2 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

5 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Abe TeferraCompany secretary2020
Liz PaulkCompany secretarysince 2021
Mazen Dimachkie MDTreasurersince 2020
Michael Hanna MDVice Chairsince 2019
Richard Barohn MDChairsince 2019

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Amanda Guidon MDInvestigator Member0$0
Michael Hehir MDInvestigator Member0$0
John Vissing MDInvestigator Member0$0
Michaela Walker MPH CCRPCoordinator Member0$0
Michael McDermott PhDBiostatistician0$0
Emma Ciafaloni MD FAANDirector0$0
James Lilleker MBChB MRCP PhDInvestigator Member0$0
Bhaskar Roy MBB MHSYoung Investigator Member0$0
Richard Barohn MDChair0$0
Michael Hanna MDCo-Chair0$0
Mazen Dimachkie MDTreasurer0$0
Liz PaulkSecretary0$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Neuromuscular Study Group Inc
EIN
474456205
Address
3599 Rainbow Blvd, Kansas City, KS, 66103-2078
State
Kansas
Mission
To advance knowledge about the cause(s), pathogenesis, epidemiology, and clinical manifestations of muscle disease and related neuromuscular disorders and to develop and implement strategies to examine promising therapeutic interventions. (as filed on the Form 990)
Activity (NTEE)
H50 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
5 (IRS master file code)
Formed
2015
Principal officer
Mazen Dimachkie MD (as named on the Form 990)
IRS ruling date
1 August 2019
Status
Code 01 (unconditional exemption)
Form 990 filings on record
6, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥7years on the filingsMichael McDermott PHD
≥6years on the filingsMichael Hehir MD
≥2years on the filingsAmanda Guidon MD
≥2years on the filingsBhaskar Roy MBB MHS

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$531k
Total liabilities
$0
Net assets or fund balances
$531k
Contributions and grants received
$0
Program service revenue
$581k
Employees
0

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$589k$519k$70k

As filed on the IRS Form 990. US dollars.