Charleys Fund Inc
Donations deductibleCharleys Fund Inc's network
4 peoplei4 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (4). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
4 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 4 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Benjamin Seckler MD | President | 2018 | 8 yrs |
| Earl Kramer | Treasurer | 2018 | 8 yrs |
| Randy Reiff | Director | 2018 | 8 yrs |
| Tracy Kramer Seckler | Director | 2018 | 8 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
1 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Laura Dalle Pazze | President & COO | since 2018 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Benjamin Seckler MD | President | 2 | $0 | ||
| Earl Kramer | Treasurer | 2 | $0 | ||
| Randy Reiff | Director | 2 | $0 | ||
| Tracy Kramer Seckler | Director | 15 | $0 |
No pay was reported for anyone in Part VII on this return.
Colorado roster
8 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20103000418). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Dr. George Vella | Director of Research & Strategic Plan |
| Karen Climo | Clerk |
| Randy Reiff | Director |
| Benjamin Seckler | President |
| Earl Kramer | Treasurer |
| Earl Kramer | Custodian of Financial Records |
| Kathe Chase | Director |
| Tracy Seckler | Director |
About
- Legal name
- Charleys Fund Inc
- EIN
- 202014968
- Address
- 635 Main St Ste 3, Gt Barrington, MA, 01230-2182
- State
- Massachusetts
- Mission
- Charley's fund's singular mission is to support the development of treatments and a cure for duchenne muscular dystrophy (dmd). We identify and direct funding to the most compelling research and treatment programs related to dmd and, (cont. On sch. O.) (as filed on the Form 990)
- Activity (NTEE)
- H50 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 6 (IRS master file code)
- Formed
- 2004
- Principal officer
- Tracy Kramer Seckler (as named on the Form 990)
- IRS ruling date
- 1 September 2005
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsBenjamin Seckler MD
≥8years on the filingsEarl Kramer
≥8years on the filingsRandy Reiff
≥8years on the filingsTracy Kramer Seckler
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $1.1m
- Total liabilities
- $12k
- Net assets or fund balances
- $1.1m
- Contributions and grants received
- $609k
- Program service revenue
- $0
- Grants and similar paid out
- $422k
- Employees
- 0
- Volunteers
- 4
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $628k | $492k | $137k |
As filed on the IRS Form 990. US dollars.
Grants paid
1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Umass Memorial Foundation | Research grant | $422k |