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US nonprofit · EIN 522164838 · San Jose, CAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 522164838) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

International Society for Mannosidosis & Related Disease Inc

Donations deductible
Revenue
$101k
year to 31 December 2025
Expenses
$62k
year to 31 December 2025
Total assets
$115k
$0 liabilities
Net assets
$115k
assets less liabilities
Directors and trustees
11
3.7y av
Staff
0
employees, year to 31 December 2025
Left since last filing
0
no seats appear to have opened
Voting members
11
reported in Part VI
How am I connected?

International Society for Mannosidosis & Related Disease Inc's network

11 people2 organisationsi11 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (11). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

11 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Abby LindenberVice Preside2025
1 yr
Cagdas CanbolatMember2023
3 yrs
Danielle ForsmanTreasurer2022
4 yrs
Darko JamnikMember2019
7 yrs
Erin HubbardMember2024
2 yrs
Fernando FernandezMember2025
1 yr
Jenny JacksonPresident2025
1 yr
Lama Khalil-QashouMember2021
5 yrs
Laurel GregierMember2021
5 yrs
Nathan HubbardCompany secretary2024
2 yrs
Tareg QashouMember2021
5 yrs
Under 5 years5 to 6 years6 years or moreShow all 11 →

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Jenny JacksonPresident2$0
Abby LindenberVice Preside2$0
Danielle ForsmanTreasurer2$0
Nathan HubbardSecretary2$0
Darko JamnikMember$0
Cagdas CanbolatMember$0
Laurel GregierMember$0
Erin HubbardMember$0
Fernando FernandezMember$0
Lama Khalil-QashouMember$0
Tareg QashouMember$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
International Society for Mannosidosis & Related Disease Inc
EIN
522164838
Address
1302 Lincoln Ave Ste 205, San Jose, CA, 95125-3015
State
California
Mission
The international society of mannosidosis and related diseases is an internationally focused organization whose mission is to advocate for families affected by one of the glycoprotein storage diseases:alpha mannosidosis, aspartylglucosaminuria, beta-mannosidosis, fucosidosis, galactosialidosis,mucolipidosis ii (i-cell disease), mucolipidosis iii (pseudo-hurier polydystrophy), schindler... (as filed on the Form 990)
Activity (NTEE)
H80 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
4 (IRS master file code)
Formed
2021
Principal officer
Danielle Forsman (as named on the Form 990)
IRS ruling date
1 August 1999
Status
Code 01 (unconditional exemption)
Form 990 filings on record
8, latest 2025
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥7years on the filingsDarko Jamnik
≥5years on the filingsLama Khalil-Qashou
≥5years on the filingsLaurel Gregier
≥5years on the filingsTareg Qashou

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$115k
Total liabilities
$0
Net assets or fund balances
$115k
Contributions and grants received
$101k
Program service revenue
$0
Employees
0

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$43k$56kDeficit $13k

As filed on the IRS Form 990. US dollars.