Xeroderma Pigmentosum Family Support Group
Donations deductibleXeroderma Pigmentosum Family Support Group's network
10 peoplei10 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Todd Feltner Chair | Chair | 2018 | 8 yrs |
| Aimee Milota | Trustee | 2023 | 3 yrs |
| Cindy Cassinat | Trustee | 2019 | 7 yrs |
| HAL Paldrmann | Trustee | 2023 | 3 yrs |
| Jeff Lester | Trustee | 2022 | 4 yrs |
| Jennifer Feltner | Trustee | 2018 | 8 yrs |
| Johanna Sweet | Trustee | 2022 | 4 yrs |
| Kyle Madden | Trustee | 2018 | 8 yrs |
| Laura Niedernhofer | Trustee | 2019 | 7 yrs |
| Sarah Madden | Treasurer | 2018 | 8 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
1 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Michele Milota | Executive Director | since 2018 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Michele Milota | Co-Executive Director | 30 | $25k | ||
| Todd Feltner | Chair | 2 | $0 | ||
| Jennifer Feltner | Trustee | 2 | $0 | ||
| Sarah Madden | Treasurer | 2 | $0 | ||
| Kyle Madden | Trustee | 2 | $0 | ||
| Johanna Sweet | Trustee | 2 | $0 | ||
| Jeff Lester | Trustee | 2 | $0 | ||
| Cindy Cassinat | Trustee | 2 | $0 | ||
| Laura Niedernhofer | Trustee | 2 | $0 | ||
| Hal Paldrmann | Trustee | 2 | $0 | ||
| Aimee Milota | Trustee | 2 | $0 |
About
- Legal name
- Xeroderma Pigmentosum Family Support Group
- EIN
- 593824809
- Address
- 3006 Notre Dame Dr, Sacramento, CA, 95826-3512
- State
- California
- Mission
- To improve the quality of life of those persons with xeroderma pigmentosum and other diagnosed ultraviolet light sensitive conditions by providing support, ultraviolet protective equipment and other assistance. (as filed on the Form 990)
- Activity (NTEE)
- H80 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 4 (IRS master file code)
- Formed
- 2005
- Principal officer
- Michele Milota (as named on the Form 990)
- IRS ruling date
- 1 March 2006
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsTodd Feltner
≥8years on the filingsJennifer Feltner
≥8years on the filingsKyle Madden
≥8years on the filingsSarah Madden
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $126k
- Total liabilities
- $1k
- Net assets or fund balances
- $124k
- Contributions and grants received
- $71k
- Program service revenue
- $0
- Employees
- 1
- Volunteers
- 50
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $85k | $147k | Deficit $61k |
As filed on the IRS Form 990. US dollars.