Kennedys Disease Association
Donations deductibleKennedys Disease Association's network
13 people1 organisationi13 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (13). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
13 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Dale Traxler | Board Member | 2021 | 5 yrs |
| Jameson Parker | Vice Preside | 2018 | 8 yrs |
| Joan Sorensen | Board Member | 2023 | 3 yrs |
| John Lauber | Treasurer | 2025 | 1 yr |
| Kathy Thompson | Company secretary | 2018 | 8 yrs |
| LEW Myers | Board Member | 2025 | 1 yr |
| Nick Holdgate | Board Member | 2025 | 1 yr |
| Pete Sariano | Board Member | 2025 | 1 yr |
| Randy SOO HOO | Former Board | 2025 | 1 yr |
| Ron Moffett | Board Member | 2025 | 1 yr |
| Simon Hill | Former Board | 2021 | 5 yrs |
| Steven Rittmaster | Board Member | 2018 | 8 yrs |
| Terry Thompson | President | 2021 | 5 yrs |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Terry Thompson | President | 20 | $0 | ||
| Jameson Parker | Vice Preside | 5 | $0 | ||
| John Lauber | Treasurer | 20 | $0 | ||
| Kathy Thompson | Secretary | 15 | $0 | ||
| Nick Holdgate | Board Member | 3 | $0 | ||
| Ron Moffett | Board Member | 8 | $0 | ||
| Lew Myers | Board Member | 12 | $0 | ||
| Steven Rittmaster | Board Member | 2 | $0 | ||
| Pete Sariano | Board Member | 3 | $0 | ||
| Joan Sorensen | Board Member | 4 | $0 | ||
| Dale Traxler | Board Member | 2 | $0 | ||
| Randy Soo Hoo | Former Board | 6 | $0 | ||
| Simon Hill | Former Board | 6 | $0 |
No pay was reported for anyone in Part VII on this return.
Colorado roster
13 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263017488). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Jameson Parker | Vice President |
| Margy Yelton | Office Manager |
| Ron Moffett | Board Member |
| Nick Holdgate | Board Member |
| Kathy Thompson | Secretary |
| Steven Rittmaster | Board Member |
| Terry Thompson | President |
| Joan Sorensen | Board Member |
| Lew Myers | Board Member |
| Dale Traxler | Board Member |
| John Lauber | Treasurer |
| Pete Sariano | Board Member |
| Lauber John |
About
- Legal name
- Kennedys Disease Association
- EIN
- 770552005
- Address
- 1445 Woodmont Ln Nw Unit 1805, Atlanta, GA, 30318-2866
- State
- Georgia
- Mission
- To educate, inform, and provide support services regarding kennedy's disease (spinal and bulbar muscular atrophy). (as filed on the Form 990)
- Activity (NTEE)
- H50 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 5 (IRS master file code)
- Formed
- 2000
- Principal officer
- Terry Thompson (as named on the Form 990)
- IRS ruling date
- 1 October 2000
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 7, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsJameson Parker
≥8years on the filingsKathy Thompson
≥8years on the filingsSteven Rittmaster
≥5years on the filingsDale Traxler
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $532k
- Total liabilities
- $336k
- Net assets or fund balances
- $197k
- Contributions and grants received
- $741k
- Program service revenue
- $0
- Grants and similar paid out
- $992k
- Employees
- 0
- Volunteers
- 162
Grants paid
9 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Yale University | $177k | |
| University of Irvine | $100k | |
| Northwestern University | $100k | |
| University of Michigan | $100k | |
| Case Western Reserve University | $77k | |
| Philadelphia College of Osteopathic | $77k | |
| Banbury Center | $40k | |
| Thomas Jefferson University | $38k | |
| Wayne State University | $18k |