Heart Valve Voice US
Donations deductibleHeart Valve Voice US' network
13 peoplei13 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (13). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
13 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Donnette Smith Chair | Chair | 2019 | 7 yrs |
| Chandra Branham | Director | 2022 | 4 yrs |
| Christina Rekash | Director | 2019 | 7 yrs |
| David Andelman | Director | 2018 | 8 yrs |
| Donald May | Director | 2019 | 7 yrs |
| Elizabeth Perpetua DNP (also filed as Elizabeth Perpetua) | Director | 2022 | 4 yrs |
| Marilyn Serafini | Director | 2018 | 8 yrs |
| Mark Russo MD | Director | 2023 | 3 yrs |
| Norm Linsky Thru 624 | Treasurer | 2024 | 2 yrs |
| Sue Peschin Thru 624 | Company secretary | 2024 | 2 yrs |
| Teresa Wright-Johnson | Vice Chair | 2019 | 7 yrs |
| Vinod Thourani | Director | 2023 | 3 yrs |
| Wayne Batchelor | Director | 2023 | 3 yrs |
Officers and senior leadership
3 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| John Lewis | Executive Director (Thru 4/2023) | 2023 |
| Karissa Charles | Executive Director (From Oct 2024) | 2024 |
| Lindsay Videnieks | Executive Director (Thru Sep 2024) | since 2023 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Donnette Smith | Chair | 2 | $0 | ||
| Teresa Wright-Johnson | Vice Chair | 2 | $0 | ||
| Sue Peschin Thru 624 | Secretary | 2 | $0 | ||
| Norm Linsky Thru 624 | Treasurer | 2 | $0 | ||
| Christina Rekash | Director | 2 | $0 | ||
| Chandra Branham | Director | 2 | $0 | ||
| Elizabeth Perpetua DNP | Director | 2 | $0 | ||
| David Andelman | Director | 2 | $0 | ||
| Wayne Batchelor | Director | 2 | $0 | ||
| Donald May | Director | 2 | $0 | ||
| Mark Russo MD | Director | 2 | $0 | ||
| Marilyn Serafini | Director | 2 | $0 | ||
| Vinod Thourani | Director | 2 | $0 | ||
| Lindsay Videnieks | Executive Director (Thru Sep 2024) | 2 | $0 | ||
| Karissa Charles | Executive Director (From Oct 2024) | 2 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Heart Valve Voice US
- EIN
- 814459237
- Address
- 100 M St Se Ste 600, Washington, DC, 20003-3648
- State
- District of Columbia
- Mission
- Heart valve voice US is a nonprofit patient advocacy organization. We advocate for early detection, meaningful support, and timely access to appropriate treatment for all people affected by heart valve disease. (as filed on the Form 990)
- Activity (NTEE)
- G19 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 4 (IRS master file code)
- Formed
- 2016
- Principal officer
- Karissa Charles (as named on the Form 990)
- IRS ruling date
- 1 January 2017
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsDavid Andelman
≥8years on the filingsMarilyn Serafini
≥7years on the filingsDonnette Smith
≥7years on the filingsChristina Rekash
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $140k
- Total liabilities
- $3k
- Net assets or fund balances
- $137k
- Contributions and grants received
- $147k
- Program service revenue
- $87k
- Grants and similar paid out
- $1k
- Employees
- 0
- Volunteers
- 13
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $234k | $234k | Deficit $856 |
As filed on the IRS Form 990. US dollars.