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US nonprofit · EIN 833063901 · Old Bridge, NJiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 833063901) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2020.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Malan Syndrome Foundation Inc

Donations deductible
Revenue
$243k
year to 31 December 2025
Expenses
$178k
year to 31 December 2025
Total assets
$211k
$0 liabilities
Net assets
$211k
assets less liabilities
Directors and trustees
3
5.4 years on average
Staff
0
employees, year to 31 December 2025
Left since last filing
0
no seats appear to have opened
Officers and senior staff
1
named in Part VII
How am I connected?

Malan Syndrome Foundation Inc's network

3 peoplei3 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (3). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

3 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record.
NameRole as filedSinceOn the board
Brandilyn JohnsonVP2021
5 yrs
Kimberly VentarolaPresident2021
5 yrs
Susan AmassTreasurer2021
5 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

1 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Christal DelagrammatikasDirector ofsince 2022

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Susan AmassTreasurer$0
Christal DelagrammatikasDirector of$0
Brandilyn JohnsonVP$0
Kimberly VentarolaPresident$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Malan Syndrome Foundation Inc
EIN
833063901
Address
15 Wendy Dr, Old Bridge, NJ, 08857-2527
State
New Jersey
Mission
The mission of the malan syndrome foundation is to improve the lives of individuals and families affected by malan syndrome in the global community through support, outreach and research. (as filed on the Form 990)
Activity (NTEE)
G20 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
4 (IRS master file code)
Formed
2019
Principal officer
Kimberly Ventarola (as named on the Form 990)
IRS ruling date
1 September 2019
Status
Code 01 (unconditional exemption)
Form 990 filings on record
3, latest 2023
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥5years on the filingsBrandilyn Johnson
≥5years on the filingsKimberly Ventarola
≥5years on the filingsSusan Amass

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$211k
Total liabilities
$0
Net assets or fund balances
$211k
Contributions and grants received
$239k
Program service revenue
$0
Grants and similar paid out
$140k
Employees
0

Grants paid

2 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
ChopMalan initiative$50k
The University of North Carolina$15k