Jansen De Vries Syndrome Foundation
Donations deductibleRevenue
$131k
year to 31 December 2025
Expenses
$117k
year to 31 December 2025
Total assets
$64k
$15 liabilities
Net assets
$64k
assets less liabilities
Directors and trustees
3
4.4y av
Left since last filing
0
no seats appear to have opened
Activity
G01
Voluntary health associations and medical disciplines
Filings on record
3
latest 2024
Jansen De Vries Syndrome Foundation's network
3 peoplei3 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (3). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
3 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Kara Kilroy | President/Director | 2022 | 4 yrs |
| Marinda Du Toit | Treasurer | 2022 | 4 yrs |
| Rachel Horne | Secretary/Vice President | 2022 | 4 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Kara Kilroy | President/Di | 16 | $0 | ||
| Rachel Horne | VP/Secretary | 16 | $0 | ||
| Marinda Du Toit | Treasurer | 8 | $0 | ||
| Sarah Crouch | Donation MGM | 8 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Jansen de Vries Syndrome Foundation
- EIN
- 854064822
- Address
- Po Box 14, Natick, MA, 01760-0001
- State
- Massachusetts
- Activity (NTEE)
- G01 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 3 (IRS master file code)
- IRS ruling date
- 1 November 2021
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 3, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥4years on the filingsKara Kilroy
≥4years on the filingsMarinda Du Toit
≥4years on the filingsRachel Horne
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $64k
- Total liabilities
- $15
- Net assets or fund balances
- $64k
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $39k | $74k | Deficit $36k |
As filed on the IRS Form 990. US dollars.