Beacon: FOR Rare Diseases LTD
Registered charity 1149646 Registered since 2012
Operates: Throughout England And Wales, Scotland, Northern Ireland
Connected trustee network
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Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.
Sector coverage
Commercial experience
Boards that share trustees
- Lifearc 1 shared trustee
- International Wildlife Coalition Trust 1 shared trustee
- Teens Unite Fighting Cancer 1 shared trustee
- LAM Action 1 shared trustee
- Champ1 UK 1 shared trustee
Related organisations
- Teens Unite Fighting Cancer 1 shared trustee
- Champ1 UK 1 shared trustee
- International Wildlife Coalition Trust 1 shared trustee
- LAM Action 1 shared trustee
- Lifearc 1 shared trustee
- CWM TAF Morgannwg NHS General Charitable Fund Similar size; both Disability
Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.rarebeacon.org |
| admin@rarebeacon.org | |
| Phone | 01223222767 |
| Address | 66 DEVONSHIRE ROAD, CAMBRIDGE, CB1 2BL |
Finances
£691,035 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £324,970 | £196,149 |
| 2022 | £269,865 | £318,343 |
| 2023 | £324,211 | £389,510 |
| 2024 | £523,301 | £478,828 |
| 2025 | £691,035 | £661,717 |
What it does
What
General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesThe General Public/mankindHow
Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource BodyCharitable objects
(1) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO FUNDAMENTAL DISEASES AND THEIR CAUSES, EFFECTS AND TREATMENTS; (2) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF FUNDAMENTAL DISEASES AND THEIR CARERS THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE; (3) TO SUPPORT RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF FUNDAMENTAL DISEASES AND THEIR APPLICATION TO COMMON DISEASES, AND DISSEMINATE THE USEFUL RESULTS THEREOF.
Governing document: MEMORANDUM AND ARTICLES INCORPORATED 10/08/2012 as amended on 14 Jan 2022
Trustees (9)
- Andrew Milliganage 61 since 2012
- Dr Anthony Kent Hallage 65 since 2012
- Dr Rebecca Godfreyage 45 since 2025
- Joanne Patra Pisaniage 61 since 2019
- Kamlesh Kanaiyalal Shethage 63 since 2025
- Michael Paul Wilburage 47 since 2025
- Scott Robin Hutchingsage 37 since 2025
- Shannon Marie Gunnage 29 since 2025
- Sophie Costelloage 48 since 2019
Linked company (Companies House)
Beacon: FOR Rare Diseases LTD · 08174973 · Active
PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital) · incorporated 10/08/2012
2 governing document(s) held from Companies House.
Connected charities (5)
- LAM Action 1 shared trustee
- Champ1 UK 1 shared trustee
- Lifearc 1 shared trustee
- Teens Unite Fighting Cancer 1 shared trustee
- International Wildlife Coalition Trust 1 shared trustee
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