Company
Beacon: for Rare Diseases LTD
Official record Companies House · updated 27th September 2026 · Sources
Network
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Who leads it
- Scott Robin HutchingsDirector · since 2025
- Dr Rebecca Alice GodfreyDirector · since 2025
- Shannon Marie GunnDirector · since 2025
- Dr Kamlesh Kanaiyalal ShethDirector · since 2025
- Michael Paul WilburDirector · since 2025
- Joanne Patra PisaniDirector · since 2019
- Sophie CostelloDirector · since 2019
- Andrew MilliganDirector · since 2012
- Dr Anthony Kent HallDirector · since 2012
Previous officers 5
- Dr Lakshminarayan Rao Ranganath 2017-2019 View profile
- Dr John Christopher Solly 2012-2017 View profile
- Dr Nicolas Thierry Sireau 2012-2024 View profile
- Edna Kissmann 2012-2025 View profile
- Julie Anne Walters 2012-2018 View profile
Directors and secretaries as filed at Companies House.
Do you help lead this organisation? Set up its network · How it works
About
- Incorporated
- 10/08/2012
- Also a registered charity
- Beacon: for Rare Diseases LTD
Grants received
10 grants · £847,767 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £847,767 (10 grants)
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.
9 directors on the board
- Scott Robin Hutchings Director · appointed 2025
- Andrew Milligan Director · appointed 2012
- Joanne Patra Pisani Director · appointed 2019
- Dr Rebecca Alice Godfrey Director · appointed 2025
- Shannon Marie Gunn Director · appointed 2025
- Dr Anthony Kent Hall Director · appointed 2012
- Sophie Costello Director · appointed 2019
- Dr Kamlesh Kanaiyalal Sheth Director · appointed 2025
- Michael Paul Wilbur Director · appointed 2025
Directors past 6 years
- Andrew Milligan Director · appointed 2012
- Joanne Patra Pisani Director · appointed 2019
- Dr Anthony Kent Hall Director · appointed 2012
- Sophie Costello Director · appointed 2019
First-time vs portfolio directors
First-time (4)
- Scott Robin Hutchings Director · appointed 2025
- Shannon Marie Gunn Director · appointed 2025
- Dr Anthony Kent Hall Director · appointed 2012
- Michael Paul Wilbur Director · appointed 2025
Portfolio (5)
- Andrew Milligan Director · appointed 2012
- Joanne Patra Pisani Director · appointed 2019
- Dr Rebecca Alice Godfrey Director · appointed 2025
- Sophie Costello Director · appointed 2019
- Dr Kamlesh Kanaiyalal Sheth Director · appointed 2025
Also govern a charity
Left in the last 12 months
- Edna Kissmann Director · appointed 2012 · resigned 2025
Where else this board sits iWhere else this board sitsThe charitable fields these directors govern in elsewhere, by Charity Commission classification. Excludes this company and any charity it is the legal face of.
The sectors these directors govern in elsewhere. This company, and any charity it is the legal face of, are excluded - counting them would just tell you what you are already looking at.
Sources
Official record from Companies House. Governance Register calculates the connections.
Record details
- Company number
- 08174973
- Status
- Active
- Type
- PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital)
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from Companies House · Calculated derived by Governance Register.
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