Registered charity (CIO) · Lancashire
LAM Action
- 10 trustees
- Income £89k (2024)
Official record Charity Commission · updated 27th September 2026 · Sources
Network
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Who leads it
- Alison Hilary Bronwen Merritt-CollinsTrustee · since 2018
- Clare Elizabeth LyonTrustee · since 2025
- David Arthur MercerTrustee · since 2016
- Gillian Elizabeth HollisTrustee · since 2016
- Joanne Patra PisaniTrustee · since 2019
- John David WoodTrustee · since 2016
- Kelly VanceTrustee · since 2016
- Professor Simon Richard JohnsonTrustee · since 2016
- Sarah Louise SharplesTrustee · since 2016
- Stephanie Jane EvansTrustee · since 2025
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- lamaction.org (opens in a new tab)
- Registered
- 2016
Income and spending
- YearIncomeSpending
- 2024£89k£58k
- 2023£103k£64k
- 2022£65k£70k
Earlier years
- 2021£45k£65k
- 2020£89k£65k
Income trend, 2020 to 2024.
Charitable objects
1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS ("LAM") AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.
Grants received
1 grant · £8,344 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £8,344
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Alison Hilary Bronwen Merritt-Collins since 2018
- Clare Elizabeth Lyon since 2025
- David Arthur Mercer since 2016
- Gillian Elizabeth Hollis since 2016
- John David Wood since 2016
- Joanne Patra Pisani since 2019
- Kelly Vance since 2016
- Professor Simon Richard Johnson since 2016
- Sarah Louise Sharples since 2016
- Stephanie Jane Evans since 2025
Trustees past 6 years
- Alison Hilary Bronwen Merritt-Collins since 2018
- David Arthur Mercer since 2016
- Gillian Elizabeth Hollis since 2016
- John David Wood since 2016
- Joanne Patra Pisani since 2019
- Kelly Vance since 2016
- Professor Simon Richard Johnson since 2016
- Sarah Louise Sharples since 2016
First-time vs portfolio trustees
First-time (9)
- Alison Hilary Bronwen Merritt-Collins since 2018
- Clare Elizabeth Lyon since 2025
- David Arthur Mercer since 2016
- Gillian Elizabeth Hollis since 2016
- John David Wood since 2016
- Kelly Vance since 2016
- Professor Simon Richard Johnson since 2016
- Sarah Louise Sharples since 2016
- Stephanie Jane Evans since 2025
Portfolio (1)
- Joanne Patra Pisani since 2019
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1167610
- Status
- Registered
- Governing document
- CIO - Association Registered 10 Jun 2016 as amended on 23 Jun 2021 as amended on 21 Jun 2023
- Contact on the register
- 07710 527636 · finance@office.lamaction.org
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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