LAM Action
Registered charity 1167610 CIO Registered since 2016
Operates: Throughout England And Wales, Scotland, Northern Ireland
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Gaps to watch
- Several long-serving trustees could step down together
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Contact
| Website | http://lamaction.org |
| finance@office.lamaction.org | |
| Phone | 07710 527636 |
| Address | 6 Brun Crescent, CLITHEROE, Lancashire, BB7 2FJ |
Finances
£89,392 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £88,765 | £64,930 |
| 2021 | £44,647 | £64,884 |
| 2022 | £65,464 | £69,970 |
| 2023 | £102,582 | £63,955 |
| 2024 | £89,392 | £57,816 |
What it does
What
The Advancement Of Health Or Saving Of LivesWho
Other Defined GroupsHow
Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS ("LAM") AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.
Governing document: CIO - Association Registered 10 Jun 2016 as amended on 23 Jun 2021 as amended on 21 Jun 2023
Trustees (11)
- Adam James Davidson since 2023
- Alison Hilary Bronwen Merritt-Collins since 2018
- Clare Elizabeth Lyon since 2025
- David Arthur Mercer since 2016
- Gillian Elizabeth Hollis since 2016
- John David Wood since 2016
- Joanne Patra Pisaniage 61 since 2019
- Kelly Vance since 2016
- Professor Simon Richard Johnsonage 59 since 2016
- Sarah Louise Sharples since 2016
- Stephanie Jane Evans since 2025
Connected charities (2)
- Lifearc 1 shared trustee
- Beacon: for Rare Diseases LTD 1 shared trustee
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