Huntingtons Disease Association
Registered charity 296453 Registered since 1987
Operates: Throughout England And Wales
Connected trustee network
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This charity's record is public. The network of who else its trustees govern is compiled from the registers by us, and an account keeps it out of bulk scrapers.
Sign in, freeBoard DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Prof Hugh Rickards Chair since 2015
- Catherine Lyon since 2017
- Dalvir Padda since 2025
- David Rhys Thomas since 2022
- Dr Akshay Nair since 2025
- Dr Nayana Swales since 2020
- Nicholas Heath
- Sharon Bakewell since 2024
- Sian Baker since 2017
- Stephen Duckett since 2018
Trustees past 6 years
- Prof Hugh Rickards Chair since 2015
- Catherine Lyon since 2017
- Sian Baker since 2017
- Stephen Duckett since 2018
First-time vs portfolio trustees
First-time (9)
- Prof Hugh Rickards Chair since 2015
- Catherine Lyon since 2017
- Dalvir Padda since 2025
- David Rhys Thomas since 2022
- Dr Akshay Nair since 2025
- Dr Nayana Swales since 2020
- Sharon Bakewell since 2024
- Sian Baker since 2017
- Stephen Duckett since 2018
Portfolio (1)
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
6.8 months of spending held in free reserves · median for charities its size: 3.9 months · was 12.9 in 2021
Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.
Connected through a shared trustee
- Victoria Convalescent Trust 1 shared trustee
Also active in the same field
- Working Well Trust Similar size; both Disability
- The Steinberg Family Charitable Trust Similar size; both Disability
- WE ARE Beams Similar size; both Disability
- Resources for Autism Similar size; both Disability
- Headway London - Brain Injury Services Similar size; both Disability
Deterministic, from public records.
Contact
| Website | www.hda.org.uk |
| info@hda.org.uk | |
| Phone | 01513315444 |
| Address | SUITE 24, THE LIVERPOOL SCIENCE PARK, INNOVATION CENTRE 1, 131 MOUNT PLEASANT, LIVERPOOL, L3 5TF |
Finances
£3,171,364 latest income
| Year | Income | Spending |
|---|---|---|
| 2022 | £2,166,325 | £1,419,521 |
| 2023 | £2,003,578 | £2,034,566 |
| 2024 | £2,266,817 | £2,372,725 |
| 2025 | £2,531,843 | £2,716,817 |
| 2026 | £3,171,364 | £2,779,017 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesDisabilityThe Prevention Or Relief Of PovertyWho
Children/young PeopleElderly/old PeoplePeople With DisabilitiesPeople Of A Particular Ethnic Or Racial OriginOther Charities Or Voluntary BodiesOther Defined GroupsHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides Human ResourcesProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
THE RELIEF AND TREATMENT OF THOSE SUFFERING FROM OR BELIEVED TO BE SUFFERING FROM HUNTINGTON'S DISEASE AND TO PROVIDE FINANCIAL SUPPORT FOR BOTH SUCH PERSONS AND THEIR FAMILIES IN NEED AND FOR RESEARCH AND THE DISSEMINATION OF THE RESULTS OF SUCH RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSE AND POSSIBLE CURES WHETHER PARTIAL OR COMPLETE AND POSSIBLE PREVENTION OF THE SAID DISEASE.
Governing document: MEMORANDUM AND ARTICLES INCORPORATED 21/05/1986AS AMENDED BY SPECIAL RESOLUTION(S) DATED 28/07/1990AS AMENDED BY SPECIAL RESOLUTION(S) DATED 05/10/2013AS REGISTERED AT COMPANIES HOUSE ON 18/10/2013
Trustees (10)
- Prof Hugh Rickardsage band 60-64 Chair since 2015
- Catherine Lyon since 2017
- Dalvir Padda since 2025
- David Rhys Thomasage band 40-44 since 2022
- Dr Akshay Nair since 2025
- Dr Nayana Swalesage band 45-49 since 2020
- Nicholas Heathage band 70-74
- Sharon Bakewellage band 55-59 since 2024
- Sian Baker since 2017
- Stephen Duckett since 2018
Linked company (Companies House)
Huntington's Disease Association · 02021975 · Active
PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital) · incorporated 21/05/1986
4 governing document(s) held from Companies House.
Connected charities (1)
- Victoria Convalescent Trust 1 shared trustee
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