Huntingtons Disease Association

Registered charity 296453 Registered since 1987

Operates: Throughout England And Wales

Connected trustee network

The connection graph needs a free account.

This charity's record is public. The network of who else its trustees govern is compiled from the registers by us, and an account keeps it out of bulk scrapers.

Find a path from this charity →

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

5.7y median 6y

average tenure

11y

longest tenure

trustees past 6 years

10.6y

average years in governance

9 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 10The Advancement Of Health Or Saving Of Lives 10Education/training 9The Prevention Or Relief Of Poverty 1

Commercial experience

Health and social care 8Other services 1

Gaps to watch

Several long-serving trustees could step down together

Boards that share trustees

Victoria Convalescent Trust 1 shared trustee

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Related organisations

Victoria Convalescent Trust 1 shared trustee
Working Well Trust Similar size; both Disability
The Steinberg Family Charitable Trust Similar size; both Disability
WE ARE Beams Similar size; both Disability
Resources for Autism Similar size; both Disability
Headway London - Brain Injury Services Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.hda.org.uk
Email	info@hda.org.uk
Phone	01513315444
Address	SUITE 24, THE LIVERPOOL SCIENCE PARK, INNOVATION CENTRE 1, 131 MOUNT PLEASANT, LIVERPOOL, L3 5TF

Finances

£2,531,843 latest income

Year	Income	Spending
2021	£1,880,169	£1,301,314
2022	£2,166,325	£1,419,521
2023	£2,003,578	£2,034,566
2024	£2,266,817	£2,372,725
2025	£2,531,843	£2,716,817

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of LivesDisabilityThe Prevention Or Relief Of Poverty

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesPeople Of A Particular Ethnic Or Racial OriginOther Charities Or Voluntary BodiesOther Defined Groups

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Human ResourcesProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE RELIEF AND TREATMENT OF THOSE SUFFERING FROM OR BELIEVED TO BE SUFFERING FROM HUNTINGTON'S DISEASE AND TO PROVIDE FINANCIAL SUPPORT FOR BOTH SUCH PERSONS AND THEIR FAMILIES IN NEED AND FOR RESEARCH AND THE DISSEMINATION OF THE RESULTS OF SUCH RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSE AND POSSIBLE CURES WHETHER PARTIAL OR COMPLETE AND POSSIBLE PREVENTION OF THE SAID DISEASE.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 21/05/1986AS AMENDED BY SPECIAL RESOLUTION(S) DATED 28/07/1990AS AMENDED BY SPECIAL RESOLUTION(S) DATED 05/10/2013AS REGISTERED AT COMPANIES HOUSE ON 18/10/2013

Trustees (10)

10trustees

59median age

2aged 70+

Prof Hugh Rickardsage 62 Chair since 2015
Catherine Lyon since 2017
Dalvir Padda since 2025
David Rhys Thomasage 42 since 2022
Dr Akshay Nair since 2025
Dr Nayana Swalesage 48 since 2020
Nicholas Heathage 72
Sharon Bakewellage 57 since 2024
Sian Baker since 2017
Stephen Duckett since 2018

Linked company (Companies House)

Huntington'S Disease Association · 02021975 · Active

PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital) · incorporated 21/05/1986

4 governing document(s) held from Companies House.

Connected charities (1)

Victoria Convalescent Trust 1 shared trustee

For recruiters

Tools for approaching charities and finding candidates. In development - register to get early access.

Report an error in this record - let us know.