Registered charity · Liverpool
Huntingtons Disease Association
Huntingtons Disease Association is a registered charity (number 296453) based in Liverpool, governed by 10 trustees and chaired by Prof Hugh Rickards since 2015. Latest income £3.2m (2026). Source: Charity Commission register, updated 25th October 2026.
- 10 trustees
- Income £3.2m (2026)
The people who lead this organisation are listed below. Create a free account to save it, get alerts and check how you are connected.
Official record Charity Commission · updated 25th October 2026 · Sources · Free, no card or password
Network
The large node is Huntingtons Disease Association. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.
Who leads it
- Prof Hugh RickardsChair · since 2015
- Catherine LyonTrustee · since 2017
- Dalvir PaddaTrustee · since 2025
- David Rhys ThomasTrustee · since 2022
- Dr Akshay NairTrustee · since 2025
- Dr Nayana SwalesTrustee · since 2020
- Nicholas HeathTrustee
- Sharon BakewellTrustee · since 2024
- Sian BakerTrustee · since 2017
- Stephen DuckettTrustee · since 2018
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability, The Prevention Or Relief Of Poverty
- Where
- Throughout England And Wales
- Website
- www.hda.org.uk (opens in a new tab)
- Linked company
- Huntington's Disease Association
- Registered
- 1987
Income and spending
- YearIncomeSpending
- 2026£3.2m£2.8m
- 2025£2.5m£2.7m
- 2024£2.3m£2.4m
Earlier years
- 2023£2.0m£2.0m
- 2022£2.2m£1.4m
Income trend, 2022 to 2026.
Income source mix, 2026: Government contracts 1%. From the charity's annual return.
Charitable objects
THE RELIEF AND TREATMENT OF THOSE SUFFERING FROM OR BELIEVED TO BE SUFFERING FROM HUNTINGTON'S DISEASE AND TO PROVIDE FINANCIAL SUPPORT FOR BOTH SUCH PERSONS AND THEIR FAMILIES IN NEED AND FOR RESEARCH AND THE DISSEMINATION OF THE RESULTS OF SUCH RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSE AND POSSIBLE CURES WHETHER PARTIAL OR COMPLETE AND POSSIBLE PREVENTION OF THE SAID DISEASE.
Grants received
33 grants · £1,744,041 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £1,355,904 (6 grants)
- Garfield Weston Foundation · £125,000 (5 grants)
- BBC Children in Need · £119,256 (2 grants)
- Department for Digital, Culture, Media & Sport · £84,131 (2 grants)
- Cheshire Community Foundation · £34,500 (6 grants)
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Prof Hugh Rickards Chair since 2015
- Catherine Lyon since 2017
- Dalvir Padda since 2025
- David Rhys Thomas since 2022
- Dr Akshay Nair since 2025
- Dr Nayana Swales since 2020
- Nicholas Heath
- Sharon Bakewell since 2024
- Sian Baker since 2017
- Stephen Duckett since 2018
Trustees past 6 years
- Prof Hugh Rickards Chair since 2015
- Catherine Lyon since 2017
- Sian Baker since 2017
- Stephen Duckett since 2018
First-time vs portfolio trustees
First-time (9)
- Prof Hugh Rickards Chair since 2015
- Catherine Lyon since 2017
- Dalvir Padda since 2025
- David Rhys Thomas since 2022
- Dr Akshay Nair since 2025
- Dr Nayana Swales since 2020
- Sharon Bakewell since 2024
- Sian Baker since 2017
- Stephen Duckett since 2018
Portfolio (1)
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
6.8 months of spending held in free reserves · median for charities its size: 3.9 months · was 12.9 in 2021
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 296453
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 21/05/1986AS AMENDED BY SPECIAL RESOLUTION(S) DATED 28/07/1990AS AMENDED BY SPECIAL RESOLUTION(S) DATED 05/10/2013AS REGISTERED AT COMPANIES HOUSE ON 18/10/2013
- Companies House
- Company number 02021975 · Active
- Contact on the register
- 01513315444 · info@hda.org.uk
- Edition
- Register edition compiled 25th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data