Company
Huntington's Disease Association
Official record Companies House · updated 4th October 2026 · Sources
Network
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Who leads it
- Sharon BakewellDirector · since 2024
- Chloe Kirsty HolmesDirector · since 2022
- Hayley HubbersteyDirector · since 2022
- David Rhys ThomasDirector · since 2022
- Dr Nayana SwalesDirector · since 2020
- Steve DuckettDirector · since 2018
- Cathy LyonDirector · since 2017
- Sian BarkerDirector · since 2017
- Professor Hugh RickardsDirector · since 2015
- Dr George El-NimrDirector · since 2012
- Nicholas Mark HeathDirector · since 1991
Previous officers 39
- Bridget Elizabeth Waters 2020-2023 View profile
- Alan Fryer 2016-2022 View profile
- Alice Christine Clarke 2015-2021 View profile
- Jayne Elisabeth Innes 2012-2013 View profile
- Ben Jon Tindell 2012-2015 View profile
- Andrew Richard Bickerdike 2012-2020 View profile
- Matthew Ellison 2011-2021 View profile
- Sandra Mary Abbott 2011-2018 View profile
- Peter Morse 2009-2016 View profile
- Sally Phoenix 2009-2012 View profile
- Dr Nicholas Sidney Stoy 2009-2012 View profile
- Dr Elizabeth Mary Howard 2009-2022 View profile
- Heather Thomas 2008-2015 View profile
- Mary Marcella Howlett 2008-2013 View profile
- Andrea Clark 2007-2011 View profile
- Kenneth Charles Taylor 2006-2015 View profile
- Arthur George Sowerby 2006-2010 View profile
- Vivien Bradley 2006-2009 View profile
- Peter Mason Frier 2006-2008 View profile
- Kirstine Mary Mcdaniel 2004-2010 View profile
- Sarah Edwina Throp 2004-2008 View profile
- Dr Oliver Quarrell 2004-2010 View profile
- Eleni Alexia Zacharias 2004-2006 View profile
- Heather Mary Smith 2004-2009 View profile
- Bert Edgar Letts 2004-2007 View profile
- Brenda Joyce Stevenson 2004-2007 View profile
- Julie Quarrington 2004-2006 View profile
- Hedley Dennis Thomas 2004-2007 View profile
- Carole Carruthers 2004-2011 View profile
- Anthony Joseph Crawford 2001-2007 View profile
- Susan Christine Watkin 1993-2004 View profile
- John Fleetwood Heald 1991-1993 View profile
- Doreen Heather Spiers 2006 View profile
- Roger Leonard Merchant 1996 View profile
- Peter Morse 2009-2016 View profile
- Glendinning, Neil Whittingham, Doctor 2004-2009 View profile
- Michael James Mines 1995-2001 View profile
- Prudence Mary Alison Willday 1992-1995 View profile
- Graham Warren Dainton-Smith 1992 View profile
Directors and secretaries as filed at Companies House.
Do you help lead this organisation? Set up its network · How it works
About
- Incorporated
- 21/05/1986
- Also a registered charity
- Huntingtons Disease Association
Financials
- Employees
- 0.52
- Turnover
- Not reported (small or micro-entity accounts)
Filed as Full accounts.
Five-year trend
| Period ending | Turnover | Net assets |
|---|---|---|
| 2026-03-31 | Not reported | Not reported |
| 2026-03-31 | Not reported | Not reported |
Figures from accounts filed at Companies House (iXBRL), period ending 2026-03-31. Where turnover is absent, small and micro-entity accounts are not required to report it, so it is not shown as zero.
Grants received
23 grants · £1,463,611 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £1,355,904 (6 grants)
- Birmingham City Council · £63,552 (3 grants)
- Cheshire Community Foundation · £22,500 (4 grants)
- Suffolk Community Foundation · £6,000 (3 grants)
- Point North · £5,000 (2 grants)
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.
11 directors on the board
- Chloe Kirsty Holmes Director · appointed 2022
- Hayley Hubberstey Director · appointed 2022
- Dr Nayana Swales Director · appointed 2020
- David Rhys Thomas Director · appointed 2022
- Nicholas Mark Heath Director · appointed 1991
- Sharon Bakewell Director · appointed 2024
- Steve Duckett Director · appointed 2018
- Professor Hugh Rickards Director · appointed 2015
- Cathy Lyon Director · appointed 2017
- Sian Barker Director · appointed 2017
- Dr George El-Nimr Director · appointed 2012
Directors past 6 years
- Nicholas Mark Heath Director · appointed 1991
- Steve Duckett Director · appointed 2018
- Professor Hugh Rickards Director · appointed 2015
- Cathy Lyon Director · appointed 2017
- Sian Barker Director · appointed 2017
- Dr George El-Nimr Director · appointed 2012
First-time vs portfolio directors
First-time (9)
- Chloe Kirsty Holmes Director · appointed 2022
- Hayley Hubberstey Director · appointed 2022
- Dr Nayana Swales Director · appointed 2020
- David Rhys Thomas Director · appointed 2022
- Nicholas Mark Heath Director · appointed 1991
- Steve Duckett Director · appointed 2018
- Professor Hugh Rickards Director · appointed 2015
- Cathy Lyon Director · appointed 2017
- Sian Barker Director · appointed 2017
Portfolio (2)
- Sharon Bakewell Director · appointed 2024
- Dr George El-Nimr Director · appointed 2012
Also govern a charity
Where else this board sits iWhere else this board sitsThe charitable fields these directors govern in elsewhere, by Charity Commission classification. Excludes this company and any charity it is the legal face of.
The sectors these directors govern in elsewhere. This company, and any charity it is the legal face of, are excluded - counting them would just tell you what you are already looking at.
Gaps to watch
- Several long-serving directors could step down together
- No director brings board experience from anywhere else
- Narrow spread of sectors across the board
Where to look Suggested search: succession planning for long-tenured seats; a director with board experience elsewhere.
Sources
Official record from Companies House. Governance Register calculates the connections.
Record details
- Company number
- 02021975
- Status
- Active
- Type
- PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital)
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from Companies House · Calculated derived by Governance Register.
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