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Governance Register
US nonprofit · EIN 731416680 · Stony Brook, NYiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 731416680) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990EZ for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2019.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

International Association for Chronic Fatigue Syndrome-ME's network

7 peoplei7 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (7). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

7 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record.
NameRole as filedSinceOn the board
Charles LappTreasurer2020
6 yrs
Fred Friedberg PHD (also filed as Fred Friedberg)President2018
8 yrs
Fridbjorn SigurdssonBoard Member2025
1 yr
Irina RozenfeldBoard Member2023
3 yrs
Lily CHUVice President2020
6 yrs
Luis NaculBoard Member2020
6 yrs
Timothy HsiaoBoard Member2025
1 yr
Under 5 years5 to 6 years6 years or more

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Fred FriedbergPresident7$0
Lily ChuVice President7$0
Charles LappTreasurer5$0
Irina RozenfeldBoard Member3$0
Luis NaculBoard Member1$0
Fridbjorn SigurdssonBoard Member2$0
Timothy HsiaoBoard Member2$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
International Association for Chronic Fatigue Syndrome-Me
EIN
731416680
Address
Po Box 583, Stony Brook, NY, 11790-0583
State
New York
Activity (NTEE)
H20Z Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
4 (IRS master file code)
IRS ruling date
1 December 1993
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2025
IRS Publication 78
PC (contributions deductible)
Principal officer
Fred Friedbergphd (Form 990-N, tax year 2019)

Most connected

Longest observed on the filings

≥8years on the filingsFred Friedberg PHD
≥6years on the filingsCharles Lapp
≥6years on the filingsLily CHU
≥6years on the filingsLuis Nacul

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$456k
Total liabilities
$0
Net assets or fund balances
$456k